FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2073479698> ?p ?o ?g. }

• W2073479698 endingPage "1712" @default.
• W2073479698 startingPage "1711" @default.
• W2073479698 abstract "My wife Norma was diagnosed with epilepsy after she collapsed when canvassing in my first General Election in 1981. We were a year married at the time and were both in our twenties. She was going door to door with a volunteer when she stopped, looked confused, and dropped to the ground. A relative who is a doctor was canvassing with her and was on hand immediately; she was taken to hospital. The first presumption was that she might be pregnant or exhausted from all the election work. She later had a second event at home when I switched T.V. channels, which I've often thought contributed to the event, and a third while in hospital for observation. It was decided she had epilepsy and she was started on medication. The impact of epilepsy has been fairly minimal on our family. Norma was and continues to be very important in managing all of my campaigns, since 1981 numbering 15. She also ran our house and was a full-time mother to our four children. She has also been an active Lady Mayoress of Dublin, and accompanied me on many of my duties as Minister for European Affairs. Norma lives a full and normal life. After 25 years on the same drug and following a further seizure, she has changed medication. She did have to restrict herself during this time, especially in relation to driving. She has now returned to driving, having successfully made the medication change. When I started in politics, I needed a space for meeting with my constituents. Coincidentally, we found a space at the Irish Epilepsy Association (they have their HQ [headquarters] in my constituency), and I became even more familiar and more concerned about the consequences of and stigma related to people with epilepsy. It was through our association with Epilepsy in Ireland, where Norma is now a member of the board, that I began to take a more proactive role on epilepsy in the European Parliament. That more resources would be provided for research and that we address the causes of ignorance. The European Parliament passed a Declaration on Epilepsy, with one of the biggest parliamentary majorities ever. This was promoted by myself and other MEPs (members of the European Parliament) who had formed an Advocacy Group on Epilepsy. This Declaration and the creation of the Advocacy Group itself helped heighten awareness of the issue within the EU institutions. Partly because of this, there have been promising signs of advancement in epilepsy research funding over the last number of years, and with better funding and coordination there is opportunity for more success. The EUs primary instrument for funding research and development, the Seventh Research Framework Programme (FP7), has a total budget of over 50 billion Euros. There have been successful epilepsy projects funded through FP7, and this is a valuable way of helping to make real progress in Europe. I am hoping we can build on this in the successor to FP7 over the next few years, and through other EU budget lines. Since the Written Declaration on Epilepsy was passed by Parliament in September 2011, a call for epilepsy research was included in FP7; this is worth up to €36 million. Through the Parliament's Annual European Epilepsy Day event, which was first launched in February 2011, we continue to raise awareness of epilepsy at the EU level. Epilepsy research may not receive the same level of funding as other neurological diseases such as Alzheimer's disease and Parkinson's disease; however, with increased awareness I think there is a strong case to get improved levels of funding for epilepsy research. In addition, for more improved research results there does need to be improved coordination at EU and Member State levels. Network. People need to write to (and not just standard or repeat letters) and call to see their public representatives. Every Parliament should have a “Friends of Epilepsy” group. Those who want to put the issue on the busy agenda of legislators must network, network, network. Politicians are constantly asked about issues—epilepsy needs to be kept on their agenda as one of those issues, otherwise it will fall out of sight. There is no substitute for wearing out the shoe leather—take time to talk to politicians and political organizations, including their youth wings, Councillors, MPs, and MEPs, and in the U.S., Congressmen, Senators, Mayors, and Governors. The more that people make their case known to those in office the better opportunity there will be to advance the cause of tackling epilepsy. Epilepsy should be seen as a disease and not a stigma, those who know should take the time to inform their legislators. This is not only true for Europe but also for the rest of the world. Any stigma or ignorance related to epilepsy must be challenged. You can help by taking the time to inform your public representatives and by trying to get them involved. Public representatives are more accessible than many people think." @default.
• W2073479698 created "2016-06-24" @default.
• W2073479698 creator A5056220869 @default.
• W2073479698 creator A5068699786 @default.
• W2073479698 date "2013-10-01" @default.
• W2073479698 modified "2023-09-26" @default.
• W2073479698 title "My epilepsy story: An interview with Gay Mitchell" @default.
• W2073479698 doi "https://doi.org/10.1111/epi.12370" @default.
• W2073479698 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/24090505" @default.
• W2073479698 hasPublicationYear "2013" @default.
• W2073479698 type Work @default.
• W2073479698 sameAs 2073479698 @default.
• W2073479698 citedByCount "0" @default.
• W2073479698 crossrefType "journal-article" @default.
• W2073479698 hasAuthorship W2073479698A5056220869 @default.
• W2073479698 hasAuthorship W2073479698A5068699786 @default.
• W2073479698 hasConcept C11171543 @default.
• W2073479698 hasConcept C118552586 @default.
• W2073479698 hasConcept C15744967 @default.
• W2073479698 hasConcept C2778186239 @default.
• W2073479698 hasConceptScore W2073479698C11171543 @default.
• W2073479698 hasConceptScore W2073479698C118552586 @default.
• W2073479698 hasConceptScore W2073479698C15744967 @default.
• W2073479698 hasConceptScore W2073479698C2778186239 @default.
• W2073479698 hasIssue "10" @default.
• W2073479698 hasLocation W20734796981 @default.
• W2073479698 hasLocation W20734796982 @default.
• W2073479698 hasOpenAccess W2073479698 @default.
• W2073479698 hasPrimaryLocation W20734796981 @default.
• W2073479698 hasRelatedWork W1884192967 @default.
• W2073479698 hasRelatedWork W2002456214 @default.
• W2073479698 hasRelatedWork W2157912935 @default.
• W2073479698 hasRelatedWork W2196831318 @default.
• W2073479698 hasRelatedWork W2731033424 @default.
• W2073479698 hasRelatedWork W2905011092 @default.
• W2073479698 hasRelatedWork W3029860646 @default.
• W2073479698 hasRelatedWork W3097488215 @default.
• W2073479698 hasRelatedWork W3138974978 @default.
• W2073479698 hasRelatedWork W3145057581 @default.
• W2073479698 hasVolume "54" @default.
• W2073479698 isParatext "false" @default.
• W2073479698 isRetracted "false" @default.
• W2073479698 magId "2073479698" @default.
• W2073479698 workType "article" @default.