FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2074068097> ?p ?o ?g. }

• W2074068097 endingPage "302" @default.
• W2074068097 startingPage "296" @default.
• W2074068097 abstract "Family-based research in genetically isolated populations is an effective approach for identifying loci influencing variation in disease traits. In common with all studies in humans, those in genetically isolated populations need ethical approval; however, existing ethical frameworks may be inadequate to protect participant privacy and confidentiality and to address participants’ information needs in such populations. Using the ethical–legal guidelines of the Council for International Organizations of Medical Sciences (CIOMS) as a template, we compared the participant information leaflets and consent forms of studies in five European genetically isolated populations to identify additional information that should be incorporated into information leaflets and consent forms to guarantee satisfactorily informed consent. We highlight the additional information that participants require on the research purpose and the reasons why their population was chosen; on the potential risks and benefits of participation; on the opportunities for benefit sharing; on privacy; on the withdrawal of consent and on the disclosure of genetic data. This research raises some important issues that should be addressed properly and identifies relevant types of information that should be incorporated into information leaflets for this type of study." @default.
• W2074068097 created "2016-06-24" @default.
• W2074068097 creator A5017009749 @default.
• W2074068097 creator A5017805751 @default.
• W2074068097 creator A5021807188 @default.
• W2074068097 creator A5025350717 @default.
• W2074068097 creator A5026632683 @default.
• W2074068097 creator A5049842312 @default.
• W2074068097 creator A5057866160 @default.
• W2074068097 creator A5068037007 @default.
• W2074068097 creator A5070568170 @default.
• W2074068097 creator A5080398404 @default.
• W2074068097 date "2009-10-14" @default.
• W2074068097 modified "2023-10-18" @default.
• W2074068097 title "Comparison of participant information and informed consent forms of five European studies in genetic isolated populations" @default.
• W2074068097 cites W1498647745 @default.
• W2074068097 cites W1499041445 @default.
• W2074068097 cites W1554372034 @default.
• W2074068097 cites W1570024178 @default.
• W2074068097 cites W1848250457 @default.
• W2074068097 cites W1852491549 @default.
• W2074068097 cites W1948797720 @default.
• W2074068097 cites W1965023145 @default.
• W2074068097 cites W1970461351 @default.
• W2074068097 cites W1970642678 @default.
• W2074068097 cites W1974564128 @default.
• W2074068097 cites W1979622655 @default.
• W2074068097 cites W1991163424 @default.
• W2074068097 cites W2001533330 @default.
• W2074068097 cites W2002377725 @default.
• W2074068097 cites W2013526262 @default.
• W2074068097 cites W2021637549 @default.
• W2074068097 cites W2022509560 @default.
• W2074068097 cites W2023675976 @default.
• W2074068097 cites W2072543911 @default.
• W2074068097 cites W2074626127 @default.
• W2074068097 cites W2077953002 @default.
• W2074068097 cites W2082540912 @default.
• W2074068097 cites W2115732221 @default.
• W2074068097 cites W2119086081 @default.
• W2074068097 cites W2121627353 @default.
• W2074068097 cites W2140911647 @default.
• W2074068097 cites W2141598014 @default.
• W2074068097 cites W2161404327 @default.
• W2074068097 cites W2163834745 @default.
• W2074068097 cites W2169527622 @default.
• W2074068097 cites W2170505944 @default.
• W2074068097 cites W2177476957 @default.
• W2074068097 cites W2402503500 @default.
• W2074068097 cites W2614730413 @default.
• W2074068097 cites W4240358931 @default.
• W2074068097 doi "https://doi.org/10.1038/ejhg.2009.155" @default.
• W2074068097 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/2987217" @default.
• W2074068097 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/19826451" @default.
• W2074068097 hasPublicationYear "2009" @default.
• W2074068097 type Work @default.
• W2074068097 sameAs 2074068097 @default.
• W2074068097 citedByCount "30" @default.
• W2074068097 countsByYear W20740680972012 @default.
• W2074068097 countsByYear W20740680972013 @default.
• W2074068097 countsByYear W20740680972014 @default.
• W2074068097 countsByYear W20740680972015 @default.
• W2074068097 countsByYear W20740680972017 @default.
• W2074068097 countsByYear W20740680972019 @default.
• W2074068097 countsByYear W20740680972021 @default.
• W2074068097 crossrefType "journal-article" @default.
• W2074068097 hasAuthorship W2074068097A5017009749 @default.
• W2074068097 hasAuthorship W2074068097A5017805751 @default.
• W2074068097 hasAuthorship W2074068097A5021807188 @default.
• W2074068097 hasAuthorship W2074068097A5025350717 @default.
• W2074068097 hasAuthorship W2074068097A5026632683 @default.
• W2074068097 hasAuthorship W2074068097A5049842312 @default.
• W2074068097 hasAuthorship W2074068097A5057866160 @default.
• W2074068097 hasAuthorship W2074068097A5068037007 @default.
• W2074068097 hasAuthorship W2074068097A5070568170 @default.
• W2074068097 hasAuthorship W2074068097A5080398404 @default.
• W2074068097 hasBestOaLocation W20740680971 @default.
• W2074068097 hasConcept C108827166 @default.
• W2074068097 hasConcept C142724271 @default.
• W2074068097 hasConcept C15744967 @default.
• W2074068097 hasConcept C17744445 @default.
• W2074068097 hasConcept C199539241 @default.
• W2074068097 hasConcept C204787440 @default.
• W2074068097 hasConcept C2779965156 @default.
• W2074068097 hasConcept C2908647359 @default.
• W2074068097 hasConcept C41008148 @default.
• W2074068097 hasConcept C68122502 @default.
• W2074068097 hasConcept C71745522 @default.
• W2074068097 hasConcept C71924100 @default.
• W2074068097 hasConcept C99454951 @default.
• W2074068097 hasConceptScore W2074068097C108827166 @default.
• W2074068097 hasConceptScore W2074068097C142724271 @default.
• W2074068097 hasConceptScore W2074068097C15744967 @default.
• W2074068097 hasConceptScore W2074068097C17744445 @default.
• W2074068097 hasConceptScore W2074068097C199539241 @default.
• W2074068097 hasConceptScore W2074068097C204787440 @default.
• W2074068097 hasConceptScore W2074068097C2779965156 @default.
• W2074068097 hasConceptScore W2074068097C2908647359 @default.

• next