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- W2076230937 abstract "This paper describes the experience of predictive genetic testing for Arrhythmogenic Right Ventricular Cardiomyopathy in the context of novel gene discovery. Two approaches to making the decision to engage in genetic testing were apparent: the decision to be tested either (a) develops gradually over time or (b) happens so quickly that it is felt as a fait accompli. Six key factors that influenced the particular approach taken by the participants were identified: (1) scientific process--available and relevant predictive genetic test; (2) numerous losses or deaths within the family; (3) physical signs and symptoms of disease; (4) gender; (5) sense of relational responsibility or moral obligation to other family members; and (6) family support. This study found that at risk individuals juxtapose scientific knowledge against their experiential knowledge and the six identified factors in order to make the decision to participate in genetic testing. Recommendations include the creation of a relational space within which to provide psychological counselling and assessment for the six identified factors that shape the decision to engage in predictive genetic testing." @default.
- W2076230937 created "2016-06-24" @default.
- W2076230937 creator A5031300682 @default.
- W2076230937 creator A5069755572 @default.
- W2076230937 date "2014-07-01" @default.
- W2076230937 modified "2023-09-26" @default.
- W2076230937 title "Making the Decision to Participate in Predictive Genetic Testing for Arrhythmogenic Right Ventricular Cardiomyopathy" @default.
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- W2076230937 cites W1959517569 @default.
- W2076230937 cites W1974133253 @default.
- W2076230937 cites W1988664464 @default.
- W2076230937 cites W1989402146 @default.
- W2076230937 cites W1991887103 @default.
- W2076230937 cites W1994799450 @default.
- W2076230937 cites W1995592580 @default.
- W2076230937 cites W1999936743 @default.
- W2076230937 cites W2002307433 @default.
- W2076230937 cites W2006939444 @default.
- W2076230937 cites W2008555452 @default.
- W2076230937 cites W2010200876 @default.
- W2076230937 cites W2011375080 @default.
- W2076230937 cites W2013670958 @default.
- W2076230937 cites W2016598614 @default.
- W2076230937 cites W2020626671 @default.
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- W2076230937 doi "https://doi.org/10.1007/s10897-014-9733-4" @default.
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- W2076230937 hasPublicationYear "2014" @default.
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