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• W2077885582 abstract "Understanding the health care experience (HE) of persons with dementia (PWD) and their caregivers is important in order to optimize the care for this population and to improve upon current clinical practice. Qualitative research is ideally suited to exploring the HE of patients and caregivers. We completed a meta-ethnography of qualitative studies exploring the HE of PWD and their caregivers and developed a conceptual framework for understanding their experience. Searches of the electronic databases MEDLINE, Embase, PsychINFO were undertaken using key words and medical subject headings for dementia, healthcare experience, and qualitative research methods. Studies involving PWD or their caregivers which described their primary care HE using either individual interviews or focus groups were included. Information on the study participants and study designed were recorded. Two authors extracted direct quotations from primary studies along with the interpretations of the primary study authors. Data from individual studies were extracted until saturation was reached. Meta-ethnography was utilized to synthesize the included studies into an overall HE framework. The quality of studies was summarized using the consolidated criteria for reporting qualitative research (COREQ). A total of 46 studies were identified that met inclusion criteria. These studies included 7 studies of PWD, 25 studies of caregivers and 14 studies combining both caregivers and PWD (total N = 1866). These studies included 30 studies using interviews, 10 using focus groups and 6 studies combining both methods. Several factors acted as barriers or facilitators to a positive HE including: the diagnostic process; amount of information provided about dementia; assistance with finding supports and services for dementia; management of dementia symptoms; and, ethical issues. Healthcare professional's attitudes and communication also had an important impact on the HE for this group. The methodological quality of studies varied. The HE of PWD and their caregivers could be enhanced through addressing common areas of dissatisfaction and building upon positive interactions. Providers of services for PWD should ensure that programs address the common areas of concerns for this population. Future studies are required to understand interventions that may improve the HE of PWD and their caregivers." @default.
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• W2077885582 date "2012-07-01" @default.
• W2077885582 modified "2023-09-27" @default.
• W2077885582 title "P3-292: Health care experiences of persons with dementia and their caregivers: A meta-ethnography of qualitative studies" @default.
• W2077885582 doi "https://doi.org/10.1016/j.jalz.2012.05.1515" @default.
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