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- W2089804969 abstract "Patient input in HTA pathways by the appropriate disease Patient Advocacy Group (PAG) uses principally humanistic and social studies as an evidence base followed by critical evaluation against traditional CEA (Cost Effective Analysis) via a scientific process. Patient and Public Involvement (PPI) in HTA is associated with a low evidence base potentially limiting its value. Research presented at ISPOR 2012 by the same authors concluded a need to improve and standardize PAG input integration in HTA decision making. To investigate the way different forms of knowledge / experience are used by PAGs in NICE HTA for guideline development and new technology review. We will look at: 1) Influence of PAG structure, resource capability, internal process and the impact of PAG advisory board physician representatives on scientific validation of patient input in HTA participation, and 2) Part I results will inform further research into selection and ranking criteria of social derived data compared with CEA. An iterative PPI best practice approach will be followed. Selection criteria: Five UK PAG groups (Neurological, Autoimmune, Rare disease, Cardiovascular and Oncology) will be invited to participate. The NICE PPI Unit will nominate groups when needed. Inclusion criteria: 1) willingness to participate, 2) prior involvement in guideline / new technology assessments; and 3) presence of medical advisory board. Research elements: Application of GRIPP criteria (Guidance Reporting Involvement Patient Public) to ensure a strong evidence base will guide development of an on-line survey and subsequent focus groups and interviews. The survey, designed for SAP review, will study: size of PAG, internal process for HTA involvement, previous HTA involvement, data submitted, PAG knowledge gaps and involvement of medical advisory board. Follow up by focus groups and interviews with PAG and advisory board members to identify insights/ themes." @default.
- W2089804969 created "2016-06-24" @default.
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- W2089804969 date "2013-11-01" @default.
- W2089804969 modified "2023-09-28" @default.
- W2089804969 title "An Approach for Quantification of Patient Advocacy Group Input in the HTA Process" @default.
- W2089804969 doi "https://doi.org/10.1016/j.jval.2013.08.1775" @default.
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