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• W2091235689 abstract "Objectives: Knowledge of disease management and treatment skills are necessary, but not sufficient, to improve adherence. This study examined: 1. gaps in knowledge of disease management, 2. deficits in treatment skills, 3. impact of age and gender, and 4. convergence between teen and parent knowledge. Methods: Knowledge of Disease Management (KDM-CF) in four domains, General Health, Lung Health, Nutrition, and Treatments, and the Skills Checklist (scored as percent correct) were administered to 571 teens (M = 14.6 years, SD = 2.6; 307 girls) and 249 parents in iCARE at 18 CF centers in the US. Results: Significant gaps in knowledge were observed, with lowest scores on the Nutrition Scale (M = 68.9 [15.4]). Skills were best for enzymes (M = 94.5 [12.00]) and worst for MDIs (M = 68.8 [18.8]) and acapella (M = 69.9 [23.1]). Age was positively correlated with Knowledge Scores (r = 0.46, p< 0.001) but not Skills. Older teens had higher KDM-CF Total Scores (M = 82.4 [9.5]) than younger teens (M = 71.8 [13.4], p< 0.001). Knowledge scores did not differ by gender, but girls (M = 82.8 [17.7]) had significantly higher Nebulizer Skills than boys (M = 79.4 [19.2], p< 0.05). Parents had higher KDM-CF Total Scores (M = 84.7 [7.5]) than adolescents (M = 75.1 [14.2]), and paired t-tests revealed significant differences in KDM scores by dyads (p< 0.001). Conclusions: Remediating gaps in knowledge of disease management and skill deficits are critical targets for intervention and should be assessed annually. These measures provide individual teen and parent data to focus teaching and retraining. Acknowledgements: Novartis Pharmaceuticals, Genentech, Inc. & Cystic Fibrosis Foundation. WS4.6 The psychometric properties of CF-specific measures of health beliefs and motivation to adhere K.A. Riekert1, D. Rand-Giovannetti1, B. Borrelli2, A. Green1, M.N. Eakin1. 1Johns Hopkins University, Medicine, Baltimore, United States; 2Brown University, Psychiatry & Human Behavior, Providence, United States" @default.
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• W2091235689 date "2012-06-01" @default.
• W2091235689 modified "2023-10-18" @default.
• W2091235689 title "WS4.5 Knowledge and skills in managing CF: Data from the I Change Adherence and Raise Expectations (iCARE) study" @default.
• W2091235689 doi "https://doi.org/10.1016/s1569-1993(12)60032-0" @default.
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