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• W2091357744 abstract "Throughout history, individuals born with certain congenital conditions, such as spina bifida, did not survive into adulthood. As a result of advances in medical technology, the lifespan for these individuals is increasing. Therefore, we urgently need to attend to a largely unexplored area – namely, the adult years of life of persons with spina bifida. Although of great importance, it is no longer enough to solely focus on reducing medical morbidity and mortality in this population. It is also imperative to consider broader areas such as inclusiveness, education, independence, employment, friendships, relationships, and other psychosocial components that tend to be of great importance in a person’s life. Families and those working clinically with children with spina bifida have long expressed concern that once their children are ineligible for services in the pediatric system, they are very much left to their own devices in terms of securing, for example, health care, independent living support, and employment.1 Successful transition from life as a child to that of an adult requires a life course approach2 and plan which can be difficult in light of the fact that some individuals with spina bifida have a cognitive profile3 that may challenge such planning. Much work remains to be done on realizing the concept of transition for those with spina bifida; moving from life as a child with significant care needs to that of an adult who can meet those needs, as well as meeting other psychosocial needs, as independently as possible. Continued systematic exploration of this area is greatly needed so that recommendations and policies can be based on empirical evidence. By empirically identifying modifiable facilitators and barriers to successful transitioning for individuals with spina bifida and other complex conditions, we will be able to help in delineating, at an early stage, who may require specific assistance, what type of assistance, and when to provide the assistance. Bellin et al.’s article is encouraging in that it not only addresses relevant topics to transition, such as self-management and employment, but it also takes into consideration other variables that may greatly impact on the trajectory of young adults with spina bifida, such as sex and level of lesion. Such information will prove very useful once we more actively start to implement research findings into practice." @default.
• W2091357744 created "2016-06-24" @default.
• W2091357744 creator A5005882798 @default.
• W2091357744 date "2011-03-21" @default.
• W2091357744 modified "2023-09-27" @default.
• W2091357744 title "Transition in young people with myelomeningocele" @default.
• W2091357744 cites W2013150804 @default.
• W2091357744 cites W2018965019 @default.
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• W2091357744 doi "https://doi.org/10.1111/j.1469-8749.2011.03945.x" @default.
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