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• W2106581076 abstract "<h3>Aims</h3> We aimed to assess the use of the Childhood Myositis Assessment Scale (CMAS) via a retrospective audit in our tertiary rheumatology department. CMAS, our audit gold standard, is internationally validated, included in two recently proposed sets of measures of disease activity in Juvenile Dermatomyositis (JDM). <h3>Methods</h3> Physiotherapy and medical notes of all patients diagnosed with JDM from 2005 to 2011 were reviewed recording CMAS scores and other JDM assessment tools including muscle-enzymes and Childhood Health Assessment Questionnaires (CHAQ). <h3>Results</h3> Eleven new patients were diagnosed, in-keeping with the incidence of JDM (age range 3-15 years). Most CMAS scores were done by our physiotherapist. All had a CMAS prior to treatment, 73% on the day of diagnosis and all within 2 days of diagnosis. The five younger children (≤5 years) had higher CMAS scores at diagnosis (mean 29) than the six older children (mean 22). Muscle-enzyme results were documented at diagnosis for all (maximum Creatinine Kinase 18100 U/l). All patients had follow-up CMAS. Children living further from the tertiary hospital had less CMAS scores documented (table 1). Younger children rarely achieved a maximum CMAS score at follow-up (table 2). 9/11 patients had CHAQ data in their notes (scores: 0-1.625) although unexpectedly not dated. <h3>Conclusions</h3> This audit confirms that from 2005-2011 our department routinely used CMAS for all JDM patients at diagnosis and follow-up. This involved an important physiotherapist role. The lower number of CMAS scores documented for children living >50 miles away was probably because there were also some done at local hospitals unavailable for this audit. Persistent low scores at follow up for our younger patients may reflect a recently reported finding that ≤5 year olds without JDM are unable to score a maximum CMAS score. We propose a novel CMAS computer game for young JDM patients. CMAS, CHAQ, and muscle-enzymes are now included on a database at each clinic visit and re-audit will be performed in the future." @default.
• W2106581076 created "2016-06-24" @default.
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• W2106581076 date "2012-05-01" @default.
• W2106581076 modified "2023-09-29" @default.
• W2106581076 title "Use of the childhood myositis assessment scale to measure disease activity in juvenile dermatomyositis and the possible limitation of patient age" @default.
• W2106581076 doi "https://doi.org/10.1136/archdischild-2012-301885.299" @default.
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