FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2108653367> ?p ?o ?g. }

• W2108653367 endingPage "1221" @default.
• W2108653367 startingPage "1217" @default.
• W2108653367 abstract "Abstract Purpose Research using banked tissue is key to advancing risk‐stratification and treatment of children with cancer. Knowledge of parental attitudes to ethical issues arising in tissue banking is very limited but essential in obtaining respectful consent. Methods One hundred parents of consecutively diagnosed children with cancer were offered a validated 34‐item questionnaire. Results Respondents (n = 54) included 10 of 16 parents of deceased children. The majority (89%; n = 48) would agree to have tissue sent anywhere in the world but prefer pediatric aims (69%). Most (98%; n = 53) would permit genetic research, if it might improve the child's health, and 76% (n = 41) would permit it, even if no impact was anticipated. A minority (41%) would not allow painful, strictly research procedures, while 15% would regardless of the child's dissent. Just over half (54%; n = 29) wish to renew consent if stored tissue is used for another purpose. Most (98%) believe their child should confirm consent by the age of majority, but only 71% believe the mature child should be able to withdraw consent. A minority (n = 40; 74%) claim few or no rights to research profits; 83% believe these should be used to fund childhood cancer research. Conclusions Parents are very supportive of tissue research, including genetic research. A majority of parents would prefer restricting research to pediatric conditions, and to be informed of results, even if of uncertain significance. These findings may assist Institutional Review Boards in assessing parentally perceived risks of research, and researchers in providing consent elements that support parents and adolescents in making fully informed choices. Pediatr Blood Cancer 2011; 57: 1217–1221. © 2011 Wiley Periodicals, Inc." @default.
• W2108653367 created "2016-06-24" @default.
• W2108653367 creator A5002714515 @default.
• W2108653367 creator A5006057377 @default.
• W2108653367 creator A5016466000 @default.
• W2108653367 creator A5025885772 @default.
• W2108653367 creator A5075497530 @default.
• W2108653367 creator A5089125982 @default.
• W2108653367 date "2011-01-19" @default.
• W2108653367 modified "2023-10-10" @default.
• W2108653367 title "Parental views on tissue banking in pediatric oncology patients" @default.
• W2108653367 cites W1551526306 @default.
• W2108653367 cites W1821180588 @default.
• W2108653367 cites W1964314495 @default.
• W2108653367 cites W1968698254 @default.
• W2108653367 cites W1976218952 @default.
• W2108653367 cites W1978148270 @default.
• W2108653367 cites W1980070532 @default.
• W2108653367 cites W1983318227 @default.
• W2108653367 cites W1992459498 @default.
• W2108653367 cites W1994805877 @default.
• W2108653367 cites W2007208181 @default.
• W2108653367 cites W2010262144 @default.
• W2108653367 cites W2011886386 @default.
• W2108653367 cites W2017274244 @default.
• W2108653367 cites W2051013157 @default.
• W2108653367 cites W2059987741 @default.
• W2108653367 cites W2060054273 @default.
• W2108653367 cites W2063603983 @default.
• W2108653367 cites W2068748457 @default.
• W2108653367 cites W2072685903 @default.
• W2108653367 cites W2072692759 @default.
• W2108653367 cites W2075338502 @default.
• W2108653367 cites W2078732176 @default.
• W2108653367 cites W2085701409 @default.
• W2108653367 cites W2089433450 @default.
• W2108653367 cites W2104255758 @default.
• W2108653367 cites W2120628498 @default.
• W2108653367 cites W2128748350 @default.
• W2108653367 cites W2129745353 @default.
• W2108653367 cites W2132837071 @default.
• W2108653367 cites W2140326351 @default.
• W2108653367 cites W2146962827 @default.
• W2108653367 cites W2147118521 @default.
• W2108653367 cites W2147622430 @default.
• W2108653367 cites W2155462734 @default.
• W2108653367 cites W2161299000 @default.
• W2108653367 cites W2163582487 @default.
• W2108653367 cites W2167223271 @default.
• W2108653367 cites W2181086016 @default.
• W2108653367 doi "https://doi.org/10.1002/pbc.22716" @default.
• W2108653367 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/21254370" @default.
• W2108653367 hasPublicationYear "2011" @default.
• W2108653367 type Work @default.
• W2108653367 sameAs 2108653367 @default.
• W2108653367 citedByCount "15" @default.
• W2108653367 countsByYear W21086533672012 @default.
• W2108653367 countsByYear W21086533672013 @default.
• W2108653367 countsByYear W21086533672014 @default.
• W2108653367 countsByYear W21086533672015 @default.
• W2108653367 countsByYear W21086533672016 @default.
• W2108653367 countsByYear W21086533672017 @default.
• W2108653367 countsByYear W21086533672021 @default.
• W2108653367 crossrefType "journal-article" @default.
• W2108653367 hasAuthorship W2108653367A5002714515 @default.
• W2108653367 hasAuthorship W2108653367A5006057377 @default.
• W2108653367 hasAuthorship W2108653367A5016466000 @default.
• W2108653367 hasAuthorship W2108653367A5025885772 @default.
• W2108653367 hasAuthorship W2108653367A5075497530 @default.
• W2108653367 hasAuthorship W2108653367A5089125982 @default.
• W2108653367 hasBestOaLocation W21086533671 @default.
• W2108653367 hasConcept C121608353 @default.
• W2108653367 hasConcept C126322002 @default.
• W2108653367 hasConcept C142724271 @default.
• W2108653367 hasConcept C17744445 @default.
• W2108653367 hasConcept C187212893 @default.
• W2108653367 hasConcept C199539241 @default.
• W2108653367 hasConcept C204787440 @default.
• W2108653367 hasConcept C2779171700 @default.
• W2108653367 hasConcept C2909143077 @default.
• W2108653367 hasConcept C2993369480 @default.
• W2108653367 hasConcept C502991105 @default.
• W2108653367 hasConcept C512399662 @default.
• W2108653367 hasConcept C523173360 @default.
• W2108653367 hasConcept C68122502 @default.
• W2108653367 hasConcept C71924100 @default.
• W2108653367 hasConcept C94625758 @default.
• W2108653367 hasConceptScore W2108653367C121608353 @default.
• W2108653367 hasConceptScore W2108653367C126322002 @default.
• W2108653367 hasConceptScore W2108653367C142724271 @default.
• W2108653367 hasConceptScore W2108653367C17744445 @default.
• W2108653367 hasConceptScore W2108653367C187212893 @default.
• W2108653367 hasConceptScore W2108653367C199539241 @default.
• W2108653367 hasConceptScore W2108653367C204787440 @default.
• W2108653367 hasConceptScore W2108653367C2779171700 @default.
• W2108653367 hasConceptScore W2108653367C2909143077 @default.
• W2108653367 hasConceptScore W2108653367C2993369480 @default.
• W2108653367 hasConceptScore W2108653367C502991105 @default.

• next