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- W2109696095 abstract "Women with pathogenic BRCA genetic mutations face high risks for cancer development. Estimates vary among mutation carriers, with lifetime risks ranging from 41% to 90% for breast cancer and 8% to 62% for ovarian cancer. Cancer risk management options for BRCA mutation positive (BRCA+) women have life-altering implications. This qualitative, phenomenological study explored the experience of cancer risk management decision making for women who are unaffected carriers of a BRCA mutation (previvors). Fifteen previvors recruited from Facing Our Risk of Cancer Empowered (FORCE), an online informational and support group, were interviewed. Findings consisted of four major themes: the early previvor experience, intense emotional upheaval; the decisional journey, navigating a personal plan for survival; lack of knowledge and experience among health care providers; and support is essential. Findings highlight the different decisional perspectives of previvors based on age and individual factors and the need for increased competence among health care providers." @default.
- W2109696095 created "2016-06-24" @default.
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- W2109696095 date "2014-01-26" @default.
- W2109696095 modified "2023-09-25" @default.
- W2109696095 title "Cancer Risk Management Decision Making for BRCA+ Women" @default.
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- W2109696095 doi "https://doi.org/10.1177/0193945913519870" @default.
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