Matches in SemOpenAlex for { <https://semopenalex.org/work/W2117718377> ?p ?o ?g. }
Showing items 1 to 84 of
84
with 100 items per page.
- W2117718377 abstract "Aims Describe the experience of young people accessing a CFS/ME specialist service. Methods In-depth qualitative interviews were conducted with 10 adolescents (age 12-18) and their mothers. Purposive sampling ensured that interviews included a range of age, sex and socio-economic status. All interviews were audio recorded and transcribed verbatim. Data was analysed using the data organisation package Nvivo, and themes were identified using techniques of constant comparison. Results Four themes emerged from the data: A long journey to the CFS/ME Service. Parents described long and complex journeys when accessing a specialist CFS/ME service, where a lack of awareness or acceptance of their child9s CFS/ME resulted in prolonged illness. “I can see the light at the end of the tunnel now, I couldn9t see that 2 years ago”. Gaining access – gatekeepers. Parents felt that GP9s and other health care professionals acted as gate keepers preventing access to specialist services. “I think at GP level there9s still either ignorance or doubt about the condition…it was only through YP349s school matron that we found out about the CFS/ME Service”. Recognition and progress - taking the next steps and treating the condition. Recognising the young person9s condition and understanding the symptoms were important to at the start of treatment. “I think it9s [specialist medical care] really good and it9s really useful and helpful, and you know what you can do …rather than what you can9t do”. Opening dialogue between health care professionals and education providers. NHS clinicians talking to those in education was considered important as it helped explain prolonged absence. “They did that for me, they actually wrote to the school and explained, the teachers at that point hadn9t been very supportive”. Conclusion Despite the publication of NICE guidance (2007) which makes clear recommendations about what children should be offered, children and their parents still experience a long and complex journey before obtaining the advice and knowledge needed to manage their illness. Recognising the illness, understanding the symptoms, and talking to other professionals are some of the key issues for families." @default.
- W2117718377 created "2016-06-24" @default.
- W2117718377 creator A5021196778 @default.
- W2117718377 creator A5039511448 @default.
- W2117718377 creator A5075673912 @default.
- W2117718377 date "2012-05-01" @default.
- W2117718377 modified "2023-09-27" @default.
- W2117718377 title "Experience of children attending a specialist CFS/ME service" @default.
- W2117718377 doi "https://doi.org/10.1136/archdischild-2012-301885.261" @default.
- W2117718377 hasPublicationYear "2012" @default.
- W2117718377 type Work @default.
- W2117718377 sameAs 2117718377 @default.
- W2117718377 citedByCount "0" @default.
- W2117718377 crossrefType "journal-article" @default.
- W2117718377 hasAuthorship W2117718377A5021196778 @default.
- W2117718377 hasAuthorship W2117718377A5039511448 @default.
- W2117718377 hasAuthorship W2117718377A5075673912 @default.
- W2117718377 hasConcept C100363876 @default.
- W2117718377 hasConcept C111472728 @default.
- W2117718377 hasConcept C116537 @default.
- W2117718377 hasConcept C136264566 @default.
- W2117718377 hasConcept C138885662 @default.
- W2117718377 hasConcept C144024400 @default.
- W2117718377 hasConcept C159110408 @default.
- W2117718377 hasConcept C160735492 @default.
- W2117718377 hasConcept C162324750 @default.
- W2117718377 hasConcept C190248442 @default.
- W2117718377 hasConcept C2778732403 @default.
- W2117718377 hasConcept C2780378061 @default.
- W2117718377 hasConcept C2908647359 @default.
- W2117718377 hasConcept C3019806175 @default.
- W2117718377 hasConcept C36289849 @default.
- W2117718377 hasConcept C50522688 @default.
- W2117718377 hasConcept C509550671 @default.
- W2117718377 hasConcept C512399662 @default.
- W2117718377 hasConcept C71924100 @default.
- W2117718377 hasConcept C99454951 @default.
- W2117718377 hasConceptScore W2117718377C100363876 @default.
- W2117718377 hasConceptScore W2117718377C111472728 @default.
- W2117718377 hasConceptScore W2117718377C116537 @default.
- W2117718377 hasConceptScore W2117718377C136264566 @default.
- W2117718377 hasConceptScore W2117718377C138885662 @default.
- W2117718377 hasConceptScore W2117718377C144024400 @default.
- W2117718377 hasConceptScore W2117718377C159110408 @default.
- W2117718377 hasConceptScore W2117718377C160735492 @default.
- W2117718377 hasConceptScore W2117718377C162324750 @default.
- W2117718377 hasConceptScore W2117718377C190248442 @default.
- W2117718377 hasConceptScore W2117718377C2778732403 @default.
- W2117718377 hasConceptScore W2117718377C2780378061 @default.
- W2117718377 hasConceptScore W2117718377C2908647359 @default.
- W2117718377 hasConceptScore W2117718377C3019806175 @default.
- W2117718377 hasConceptScore W2117718377C36289849 @default.
- W2117718377 hasConceptScore W2117718377C50522688 @default.
- W2117718377 hasConceptScore W2117718377C509550671 @default.
- W2117718377 hasConceptScore W2117718377C512399662 @default.
- W2117718377 hasConceptScore W2117718377C71924100 @default.
- W2117718377 hasConceptScore W2117718377C99454951 @default.
- W2117718377 hasLocation W21177183771 @default.
- W2117718377 hasOpenAccess W2117718377 @default.
- W2117718377 hasPrimaryLocation W21177183771 @default.
- W2117718377 hasRelatedWork W1532041299 @default.
- W2117718377 hasRelatedWork W1983247950 @default.
- W2117718377 hasRelatedWork W1991760478 @default.
- W2117718377 hasRelatedWork W2094100348 @default.
- W2117718377 hasRelatedWork W2146571534 @default.
- W2117718377 hasRelatedWork W2147921664 @default.
- W2117718377 hasRelatedWork W2164822659 @default.
- W2117718377 hasRelatedWork W2180045837 @default.
- W2117718377 hasRelatedWork W2305063328 @default.
- W2117718377 hasRelatedWork W2321837251 @default.
- W2117718377 hasRelatedWork W2326922251 @default.
- W2117718377 hasRelatedWork W2332281890 @default.
- W2117718377 hasRelatedWork W2335763815 @default.
- W2117718377 hasRelatedWork W2408932071 @default.
- W2117718377 hasRelatedWork W2418042230 @default.
- W2117718377 hasRelatedWork W2550455058 @default.
- W2117718377 hasRelatedWork W2980955842 @default.
- W2117718377 hasRelatedWork W2991320939 @default.
- W2117718377 hasRelatedWork W3094955880 @default.
- W2117718377 hasRelatedWork W3194174722 @default.
- W2117718377 isParatext "false" @default.
- W2117718377 isRetracted "false" @default.
- W2117718377 magId "2117718377" @default.
- W2117718377 workType "article" @default.