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- W2123754114 abstract "Abstract Aim: To determine whether self‐esteem among children with cystic fibrosis (CF) and their healthy siblings differs from that of a healthy reference group and whether there are differences within and between sibling pairs. Methods: All Swedish CF children 6–14 y old with a healthy sibling in the same age range ( n =65) were invited to participate, 55 sibling pairs and their parents taking part in the study. Five aspects of the children's self‐concept—physical characteristics, skills and talents, mental well‐being, relations to parents and family, and relations to others—were assessed by the “I think I am” self‐evaluation questionnaire. Severity of illness was assessed by means of the Shwachman Clinical Evaluation System. Results: Whereas self‐evaluation did not differ between groups at a general level, healthy girls as well as those with CF scored lower than girls in the reference group on the “mental well‐being” and “relations to parents and family” subscales. Comparison of gender combinations (sick girl/healthy boy, sick girl/healthy girl, sick boy/healthy boy, sick boy/healthy girl) suggested that girls pay a cost of a lesser sense of psychological well‐being and feelings of inadequacy in relation to their parents and family. The Shwachman score of the sick child was not related to the level of self‐esteem. Conclusion: When CF is present among siblings, girls seem to carry more of the family pain than boys, a finding that calls for an increased awareness of the girls' situation by members of care teams." @default.
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- W2123754114 date "2005-09-01" @default.
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- W2123754114 title "Gender affects self-evaluation in children with cystic fibrosis and their healthy siblings" @default.
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- W2123754114 doi "https://doi.org/10.1111/j.1651-2227.2005.tb02094.x" @default.
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