FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2126994024> ?p ?o ?g. }

• W2126994024 endingPage "566" @default.
• W2126994024 startingPage "561" @default.
• W2126994024 abstract "<h3>Introduction</h3> Biobank-based research is growing in importance. A major controversy exists about the return of aggregate and individual research results. <h3>Methods</h3> The authors used a mixed-method approach in order to study parents9 attitudes towards the return of research results regarding themselves and their children. Participants attended four 2-h, deliberative-engagement sessions held on two consecutive Saturdays. Each session consisted of an educational presentation followed by focus-group discussions with structured questions and prompts. This manuscript examines discussions from the second Saturday which focused on the benefits and risks of returning aggregate and individual research results regarding both adults (morning session) and children (afternoon session). Attitudes were assessed in pre-engagement and post-engagement surveys. <h3>Results</h3> The authors recruited 45 African-American adults whose children received medical care at two healthcare facilities on the South Side of Chicago that serve different socioeconomic communities. Three dominant themes were identified. First, most participants stated that they would enrol themselves and their children in a biobank, although there was a vocal minority opposed to enrolling children, particularly children unable to participate in the consent process. Second, participants did not distinguish between the results they wanted to receive regarding themselves and their children. Supplemental survey data found no attitudinal changes pre-engagement and post-engagement. Third, participants believed that children should be allowed access to their health information, but they wanted to be involved in deciding when and how the information was shared. <h3>Discussion</h3> Participant attitudes are in tension with current biobank policies. An intensive educational effort had no effect on their attitudes." @default.
• W2126994024 created "2016-06-24" @default.
• W2126994024 creator A5064447108 @default.
• W2126994024 creator A5068267879 @default.
• W2126994024 date "2012-05-09" @default.
• W2126994024 modified "2023-09-26" @default.
• W2126994024 title "Attitudes of African-American parents about biobank participation and return of results for themselves and their children" @default.
• W2126994024 cites W1498723358 @default.
• W2126994024 cites W1551526306 @default.
• W2126994024 cites W1555162231 @default.
• W2126994024 cites W1958609847 @default.
• W2126994024 cites W1968754510 @default.
• W2126994024 cites W1975765667 @default.
• W2126994024 cites W1979028071 @default.
• W2126994024 cites W1980070532 @default.
• W2126994024 cites W1993640560 @default.
• W2126994024 cites W2013821399 @default.
• W2126994024 cites W2016172156 @default.
• W2126994024 cites W2026231457 @default.
• W2126994024 cites W2028108267 @default.
• W2126994024 cites W2029287553 @default.
• W2126994024 cites W2043016130 @default.
• W2126994024 cites W2047872109 @default.
• W2126994024 cites W2057716895 @default.
• W2126994024 cites W2060824493 @default.
• W2126994024 cites W2062210702 @default.
• W2126994024 cites W2071483390 @default.
• W2126994024 cites W2072724540 @default.
• W2126994024 cites W2078893890 @default.
• W2126994024 cites W2082128340 @default.
• W2126994024 cites W2082422522 @default.
• W2126994024 cites W2084050890 @default.
• W2126994024 cites W2092703565 @default.
• W2126994024 cites W2097987831 @default.
• W2126994024 cites W2099415836 @default.
• W2126994024 cites W2112120088 @default.
• W2126994024 cites W2125427220 @default.
• W2126994024 cites W2140206817 @default.
• W2126994024 cites W2146933242 @default.
• W2126994024 cites W2152272535 @default.
• W2126994024 cites W2152422024 @default.
• W2126994024 cites W2153934590 @default.
• W2126994024 cites W2155462734 @default.
• W2126994024 cites W2162354843 @default.
• W2126994024 cites W2170465949 @default.
• W2126994024 cites W2230764959 @default.
• W2126994024 cites W2470422166 @default.
• W2126994024 cites W2557253219 @default.
• W2126994024 doi "https://doi.org/10.1136/medethics-2012-100600" @default.
• W2126994024 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/4260924" @default.
• W2126994024 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/22573882" @default.
• W2126994024 hasPublicationYear "2012" @default.
• W2126994024 type Work @default.
• W2126994024 sameAs 2126994024 @default.
• W2126994024 citedByCount "35" @default.
• W2126994024 countsByYear W21269940242013 @default.
• W2126994024 countsByYear W21269940242014 @default.
• W2126994024 countsByYear W21269940242015 @default.
• W2126994024 countsByYear W21269940242016 @default.
• W2126994024 countsByYear W21269940242017 @default.
• W2126994024 countsByYear W21269940242018 @default.
• W2126994024 countsByYear W21269940242019 @default.
• W2126994024 countsByYear W21269940242020 @default.
• W2126994024 countsByYear W21269940242021 @default.
• W2126994024 countsByYear W21269940242022 @default.
• W2126994024 crossrefType "journal-article" @default.
• W2126994024 hasAuthorship W2126994024A5064447108 @default.
• W2126994024 hasAuthorship W2126994024A5068267879 @default.
• W2126994024 hasBestOaLocation W21269940242 @default.
• W2126994024 hasConcept C116567970 @default.
• W2126994024 hasConcept C136764020 @default.
• W2126994024 hasConcept C142724271 @default.
• W2126994024 hasConcept C144133560 @default.
• W2126994024 hasConcept C147077947 @default.
• W2126994024 hasConcept C15744967 @default.
• W2126994024 hasConcept C162853370 @default.
• W2126994024 hasConcept C204787440 @default.
• W2126994024 hasConcept C2779182362 @default.
• W2126994024 hasConcept C2908647359 @default.
• W2126994024 hasConcept C41008148 @default.
• W2126994024 hasConcept C509550671 @default.
• W2126994024 hasConcept C512399662 @default.
• W2126994024 hasConcept C54355233 @default.
• W2126994024 hasConcept C56995899 @default.
• W2126994024 hasConcept C68122502 @default.
• W2126994024 hasConcept C71924100 @default.
• W2126994024 hasConcept C86803240 @default.
• W2126994024 hasConcept C99454951 @default.
• W2126994024 hasConceptScore W2126994024C116567970 @default.
• W2126994024 hasConceptScore W2126994024C136764020 @default.
• W2126994024 hasConceptScore W2126994024C142724271 @default.
• W2126994024 hasConceptScore W2126994024C144133560 @default.
• W2126994024 hasConceptScore W2126994024C147077947 @default.
• W2126994024 hasConceptScore W2126994024C15744967 @default.
• W2126994024 hasConceptScore W2126994024C162853370 @default.
• W2126994024 hasConceptScore W2126994024C204787440 @default.
• W2126994024 hasConceptScore W2126994024C2779182362 @default.
• W2126994024 hasConceptScore W2126994024C2908647359 @default.

• next