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- W2132906403 abstract "Background. Medical problems of individuals with intellectual disabilities (ID) have been increasingly recognized in recent years. However, less attention has been give to the needs of individuals in different diagnostic groups. The purpose of this study was to explore the healthcare experiences of parents of children with fragile X syndrome in Ontario. The main objectives of the study were (1) to identify the challenges and successes parents face when accessing healthcare services for their children with ID; and (2) to identify suggestions and strategies to enhance access and quality of healthcare services for children with ID. Methods. Qualitative data were obtained from parents during a focus group conducted with five mothers, two fathers and one foster mother of children with fragile X syndrome." @default.
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- W2132906403 date "2007-01-01" @default.
- W2132906403 modified "2023-09-24" @default.
- W2132906403 title "Healthcare Concerns of Parents of Individuals With Fragile X Syndrome Preliminary Results From Qualitative Data Analyses" @default.
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