FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2140650081> ?p ?o ?g. }

• W2140650081 endingPage "157" @default.
• W2140650081 startingPage "157" @default.
• W2140650081 abstract "The overall aim was to study and gain knowledge about what it means to live with muscular dystrophy and to study rehabilitation from the patient's perspective, among adults with muscular dystrophy in three Swedish counties: Orebro, Ostergotland and Norrbotten. The thesis comprises two qualitative and three quantitative studies. Thirty interviews about illness experience were subjected to content analysis and 37 interviews about perceived support in rehabilitation were analysed according to phenomenological guidelines. Data were also collected by the Assessment of Problem-focused Coping (APC), the ADL Staircase, the Self-report ADL, the Mental Adjustment to Cancer Scale, the Sickness Impact Profile, the Psychosocial well-being questionnaire and the Quality of Life Profile. The APC was developed for assessment of problem-focused coping and also covers questions concerning the extent to which activities are experienced as problems and satisfaction with activities. The result shows that the experience of illness is largely similar in the three diagnostic groups (proximal MD, Myotonic muscular dystrophy, Myopathia distalis tarda hereditaria). The persons reported many restrictions of everyday activities, most often in mobility and transportation. Over half were dependent on other people in activities of daily living, and the illness was experienced mainly as having negative consequences for everyday life. A lower quality of life may be partly explained by a reduced capacity for activities. Problem-focused coping was used only to a limited extent, and 'Fighting spirit' was the dominant coping strategy. Rehabilitation was experienced as very valuable, particularly the education about the muscle disease, technical aids, grants and physical training. Over a five-year period, disability and quality of life of the study participants deteriorated significantly, and the dependence on other people increased." @default.
• W2140650081 created "2016-06-24" @default.
• W2140650081 creator A5083626098 @default.
• W2140650081 date "2001-01-01" @default.
• W2140650081 modified "2023-09-24" @default.
• W2140650081 title "Living with Muscular Dystrophy: Illness Experience, Activities of Daily Living, Coping, Quality of Life and Rehabilitation" @default.
• W2140650081 cites W103735541 @default.
• W2140650081 cites W10680619 @default.
• W2140650081 cites W108273331 @default.
• W2140650081 cites W1216021476 @default.
• W2140650081 cites W122935539 @default.
• W2140650081 cites W1263831343 @default.
• W2140650081 cites W1272246027 @default.
• W2140650081 cites W145218228 @default.
• W2140650081 cites W1480455053 @default.
• W2140650081 cites W1530155851 @default.
• W2140650081 cites W1558929186 @default.
• W2140650081 cites W1585578987 @default.
• W2140650081 cites W1604682389 @default.
• W2140650081 cites W162505371 @default.
• W2140650081 cites W1720504792 @default.
• W2140650081 cites W1748939939 @default.
• W2140650081 cites W1758228986 @default.
• W2140650081 cites W1801990489 @default.
• W2140650081 cites W1844343912 @default.
• W2140650081 cites W1919452209 @default.
• W2140650081 cites W1964059133 @default.
• W2140650081 cites W1967974729 @default.
• W2140650081 cites W1971000129 @default.
• W2140650081 cites W1971635751 @default.
• W2140650081 cites W1972734578 @default.
• W2140650081 cites W1973170597 @default.
• W2140650081 cites W1977651687 @default.
• W2140650081 cites W1979112784 @default.
• W2140650081 cites W1981653122 @default.
• W2140650081 cites W1983659550 @default.
• W2140650081 cites W1984186949 @default.
• W2140650081 cites W1989526262 @default.
• W2140650081 cites W1989992767 @default.
• W2140650081 cites W1994233702 @default.
• W2140650081 cites W1996431628 @default.
• W2140650081 cites W2002425344 @default.
• W2140650081 cites W2003697065 @default.
• W2140650081 cites W2005526202 @default.
• W2140650081 cites W2006209122 @default.
• W2140650081 cites W2009812839 @default.
• W2140650081 cites W2019119130 @default.
• W2140650081 cites W2021480659 @default.
• W2140650081 cites W2030696791 @default.
• W2140650081 cites W2031851587 @default.
• W2140650081 cites W2039272848 @default.
• W2140650081 cites W2056031154 @default.
• W2140650081 cites W2056439033 @default.
• W2140650081 cites W2064102326 @default.
• W2140650081 cites W2067104539 @default.
• W2140650081 cites W2067863794 @default.
• W2140650081 cites W2069234447 @default.
• W2140650081 cites W2074002170 @default.
• W2140650081 cites W2074124706 @default.
• W2140650081 cites W2074299267 @default.
• W2140650081 cites W2074823797 @default.
• W2140650081 cites W2078805248 @default.
• W2140650081 cites W2084391106 @default.
• W2140650081 cites W2084453327 @default.
• W2140650081 cites W2085620969 @default.
• W2140650081 cites W2085837773 @default.
• W2140650081 cites W2095161817 @default.
• W2140650081 cites W2098165477 @default.
• W2140650081 cites W2099084980 @default.
• W2140650081 cites W2107641706 @default.
• W2140650081 cites W2111709668 @default.
• W2140650081 cites W2112949230 @default.
• W2140650081 cites W2113524576 @default.
• W2140650081 cites W2118665104 @default.
• W2140650081 cites W2119744379 @default.
• W2140650081 cites W2120687335 @default.
• W2140650081 cites W2125745244 @default.
• W2140650081 cites W2126918041 @default.
• W2140650081 cites W2127781439 @default.
• W2140650081 cites W2134598722 @default.
• W2140650081 cites W2134802329 @default.
• W2140650081 cites W2140366467 @default.
• W2140650081 cites W2142154011 @default.
• W2140650081 cites W2150774596 @default.
• W2140650081 cites W2151017802 @default.
• W2140650081 cites W2154997944 @default.
• W2140650081 cites W2167360782 @default.
• W2140650081 cites W2172228499 @default.
• W2140650081 cites W2255756224 @default.
• W2140650081 cites W2327662835 @default.
• W2140650081 cites W2329723832 @default.
• W2140650081 cites W2404169791 @default.
• W2140650081 cites W2409495176 @default.
• W2140650081 cites W2418868338 @default.
• W2140650081 cites W2429764828 @default.
• W2140650081 cites W2463441964 @default.
• W2140650081 cites W2466718643 @default.
• W2140650081 cites W2787241139 @default.

• next