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- W2149253605 abstract "Quality of life (QOL) is an important concept for individuals with chronic health conditions. Measuring and supporting QOL in children, adolescents, and adults with spina bifida (SB) may be especially unique given the broad range of complex health and rehabilitative challenges they encounter. This article provides a research update on (a) conceptual and methodological considerations in measuring QOL and a related construct, health-related quality of life (HRQOL); (b) the state of the science in QOL and HRQOL for individuals with SB; and (c) gaps in the evidence and implications for future research. A synthesis of the literature was limited by the use of 17 different QOL and HRQOL instruments to measure these constructs and notable weaknesses in the most frequently used condition-specific HRQOL instrument. However, a tentative pattern of lower scores on the physical domain of HRQOL measures in individuals with SB in comparison to peers emerged, while discrepancies in emotional, social, and school domains varied by study. Recommendations for future research include using a lifespan approach to expand QOL studies to older adults with SB and focusing on intervention research to prevent or treat decreased HRQOL." @default.
- W2149253605 created "2016-06-24" @default.
- W2149253605 creator A5003540902 @default.
- W2149253605 creator A5030009504 @default.
- W2149253605 date "2010-01-01" @default.
- W2149253605 modified "2023-10-03" @default.
- W2149253605 title "Quality of life in individuals with spina bifida: A research update" @default.
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- W2149253605 cites W1957417239 @default.
- W2149253605 cites W1964265826 @default.
- W2149253605 cites W1964469577 @default.
- W2149253605 cites W1967364174 @default.
- W2149253605 cites W1970024789 @default.
- W2149253605 cites W1973044606 @default.
- W2149253605 cites W1976121891 @default.
- W2149253605 cites W1981879244 @default.
- W2149253605 cites W1982657999 @default.
- W2149253605 cites W1982876645 @default.
- W2149253605 cites W1993951365 @default.
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- W2149253605 cites W2003835781 @default.
- W2149253605 cites W2005734878 @default.
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- W2149253605 cites W2008036304 @default.
- W2149253605 cites W2015541141 @default.
- W2149253605 cites W2026565231 @default.
- W2149253605 cites W2028150310 @default.
- W2149253605 cites W2028489954 @default.
- W2149253605 cites W2034699139 @default.
- W2149253605 cites W2037208193 @default.
- W2149253605 cites W2039192983 @default.
- W2149253605 cites W2043082913 @default.
- W2149253605 cites W2046241491 @default.
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- W2149253605 cites W2050679821 @default.
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- W2149253605 doi "https://doi.org/10.1002/ddrr.96" @default.
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