Matches in SemOpenAlex for { <https://semopenalex.org/work/W2151232014> ?p ?o ?g. }
Showing items 1 to 100 of
100
with 100 items per page.
- W2151232014 endingPage "1505" @default.
- W2151232014 startingPage "1499" @default.
- W2151232014 abstract "Newborn screening saves lives, but the way in which parents learn of a positive screening test is also important for adherence with treatment plans and avoidance of psychosocial complications. The first messages provided to parents may be particularly important for understanding, especially when the infant is found to be a heterozygous carrier for sickle cell hemoglobinopathy (SCH) or cystic fibrosis (CF). This study investigated the prevalence of initially misleading communication, defined as the inclusion of 1 of 55 bad-news content items (eg, the screening test is positive) before any of 39 good-news content items (eg, the infant is healthy, normal, a carrier, or otherwise without problems).As part of a larger study of the content of counseling after newborn genetic screening, we used a quantitative, explicit-criteria method to abstract 59 transcribed conversations between pediatric residents and standardized parents of an infant who was found through newborn screening to carry either CF or SCH.Of 59 transcripts, 41 were found to be misleading (at least 1 bad-news content statement before the first good-news content statement). There were significantly more misleading likely-CF-carrier than SCH-carrier transcripts (89.7% vs 50%). Among the misleading transcripts, the mean number of misleading statements was 5.5. The mean distance between the first bad-news and first good-news statements was 28.1 statements (20.5% of the total duration of counseling).The high prevalence of misleading content and the time lag before clarification does not bode well for parental understanding of infant carrier status. Future projects should improve curricula for training programs and develop quality-assurance efforts for community clinicians both to improve parental understanding and help assuage society's fears about the safety of genetic screening technologies." @default.
- W2151232014 created "2016-06-24" @default.
- W2151232014 creator A5012051210 @default.
- W2151232014 creator A5073269563 @default.
- W2151232014 date "2005-12-01" @default.
- W2151232014 modified "2023-09-25" @default.
- W2151232014 title "Initially Misleading Communication of Carrier Results After Newborn Genetic Screening" @default.
- W2151232014 cites W116417846 @default.
- W2151232014 cites W1591998101 @default.
- W2151232014 cites W1972038920 @default.
- W2151232014 cites W1991506216 @default.
- W2151232014 cites W1991635648 @default.
- W2151232014 cites W1992345628 @default.
- W2151232014 cites W1997092421 @default.
- W2151232014 cites W2000403810 @default.
- W2151232014 cites W2004235323 @default.
- W2151232014 cites W2007077004 @default.
- W2151232014 cites W2031830184 @default.
- W2151232014 cites W2032278854 @default.
- W2151232014 cites W2043802352 @default.
- W2151232014 cites W2071477183 @default.
- W2151232014 cites W2074664905 @default.
- W2151232014 cites W2083548492 @default.
- W2151232014 cites W2091955035 @default.
- W2151232014 cites W2138881269 @default.
- W2151232014 cites W2166493411 @default.
- W2151232014 cites W2170843389 @default.
- W2151232014 cites W2415122753 @default.
- W2151232014 cites W2557253219 @default.
- W2151232014 cites W4233408828 @default.
- W2151232014 cites W4241014494 @default.
- W2151232014 doi "https://doi.org/10.1542/peds.2005-0449" @default.
- W2151232014 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/16322177" @default.
- W2151232014 hasPublicationYear "2005" @default.
- W2151232014 type Work @default.
- W2151232014 sameAs 2151232014 @default.
- W2151232014 citedByCount "42" @default.
- W2151232014 countsByYear W21512320142012 @default.
- W2151232014 countsByYear W21512320142013 @default.
- W2151232014 countsByYear W21512320142014 @default.
- W2151232014 countsByYear W21512320142015 @default.
- W2151232014 countsByYear W21512320142016 @default.
- W2151232014 countsByYear W21512320142017 @default.
- W2151232014 countsByYear W21512320142019 @default.
- W2151232014 countsByYear W21512320142022 @default.
- W2151232014 crossrefType "journal-article" @default.
- W2151232014 hasAuthorship W2151232014A5012051210 @default.
- W2151232014 hasAuthorship W2151232014A5073269563 @default.
- W2151232014 hasConcept C118552586 @default.
- W2151232014 hasConcept C126322002 @default.
- W2151232014 hasConcept C150966472 @default.
- W2151232014 hasConcept C158951850 @default.
- W2151232014 hasConcept C172680121 @default.
- W2151232014 hasConcept C187212893 @default.
- W2151232014 hasConcept C2776169613 @default.
- W2151232014 hasConcept C2776938444 @default.
- W2151232014 hasConcept C2778258057 @default.
- W2151232014 hasConcept C2779234561 @default.
- W2151232014 hasConcept C512399662 @default.
- W2151232014 hasConcept C54355233 @default.
- W2151232014 hasConcept C71924100 @default.
- W2151232014 hasConcept C80227256 @default.
- W2151232014 hasConcept C86803240 @default.
- W2151232014 hasConceptScore W2151232014C118552586 @default.
- W2151232014 hasConceptScore W2151232014C126322002 @default.
- W2151232014 hasConceptScore W2151232014C150966472 @default.
- W2151232014 hasConceptScore W2151232014C158951850 @default.
- W2151232014 hasConceptScore W2151232014C172680121 @default.
- W2151232014 hasConceptScore W2151232014C187212893 @default.
- W2151232014 hasConceptScore W2151232014C2776169613 @default.
- W2151232014 hasConceptScore W2151232014C2776938444 @default.
- W2151232014 hasConceptScore W2151232014C2778258057 @default.
- W2151232014 hasConceptScore W2151232014C2779234561 @default.
- W2151232014 hasConceptScore W2151232014C512399662 @default.
- W2151232014 hasConceptScore W2151232014C54355233 @default.
- W2151232014 hasConceptScore W2151232014C71924100 @default.
- W2151232014 hasConceptScore W2151232014C80227256 @default.
- W2151232014 hasConceptScore W2151232014C86803240 @default.
- W2151232014 hasIssue "6" @default.
- W2151232014 hasLocation W21512320141 @default.
- W2151232014 hasLocation W21512320142 @default.
- W2151232014 hasOpenAccess W2151232014 @default.
- W2151232014 hasPrimaryLocation W21512320141 @default.
- W2151232014 hasRelatedWork W1963891903 @default.
- W2151232014 hasRelatedWork W1981671110 @default.
- W2151232014 hasRelatedWork W2044797124 @default.
- W2151232014 hasRelatedWork W2066590578 @default.
- W2151232014 hasRelatedWork W2151177473 @default.
- W2151232014 hasRelatedWork W2531191494 @default.
- W2151232014 hasRelatedWork W3024456095 @default.
- W2151232014 hasRelatedWork W3043669537 @default.
- W2151232014 hasRelatedWork W3126814141 @default.
- W2151232014 hasRelatedWork W4255428519 @default.
- W2151232014 hasVolume "116" @default.
- W2151232014 isParatext "false" @default.
- W2151232014 isRetracted "false" @default.
- W2151232014 magId "2151232014" @default.
- W2151232014 workType "article" @default.