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- W2164867418 abstract "Congenital muscular dystrophies are a group of rare neuromuscular disorders with a wide spectrum of clinical phenotypes. Recent advances in understanding the molecular pathogenesis of congenital muscular dystrophy have enabled better diagnosis. However, medical care for patients with congenital muscular dystrophy remains very diverse. Advances in many areas of medical technology have not been adopted in clinical practice. The International Standard of Care Committee for Congenital Muscular Dystrophy was established to identify current care issues, review literature for evidence-based practice, and achieve consensus on care recommendations in 7 areas: diagnosis, neurology, pulmonology, orthopedics/rehabilitation, gastroenterology/ nutrition/speech/oral care, cardiology, and palliative care. To achieve consensus on the care recommendations, 2 separate online surveys were conducted to poll opinions from experts in the field and from congenital muscular dystrophy families. The final consensus was achieved in a 3-day workshop conducted in Brussels, Belgium, in November 2009. This consensus statement describes the care recommendations from this committee." @default.
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- W2164867418 date "2010-11-15" @default.
- W2164867418 modified "2023-10-16" @default.
- W2164867418 title "Consensus Statement on Standard of Care for Congenital Muscular Dystrophies" @default.
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- W2164867418 cites W1999519921 @default.
- W2164867418 cites W2000792373 @default.
- W2164867418 cites W2000914217 @default.
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- W2164867418 cites W2027729613 @default.
- W2164867418 cites W2031062074 @default.
- W2164867418 cites W2032504541 @default.
- W2164867418 cites W2038819195 @default.
- W2164867418 cites W2040608943 @default.
- W2164867418 cites W2047177399 @default.
- W2164867418 cites W2048268940 @default.
- W2164867418 cites W2048609014 @default.
- W2164867418 cites W2052827463 @default.
- W2164867418 cites W2054570566 @default.
- W2164867418 cites W2055287700 @default.
- W2164867418 cites W2055948319 @default.
- W2164867418 cites W2060033256 @default.
- W2164867418 cites W2060091942 @default.
- W2164867418 cites W2060508436 @default.
- W2164867418 cites W2063925586 @default.
- W2164867418 cites W2069912116 @default.
- W2164867418 cites W2070411703 @default.
- W2164867418 cites W2075262704 @default.
- W2164867418 cites W2079136976 @default.
- W2164867418 cites W2081186262 @default.
- W2164867418 cites W2081525186 @default.
- W2164867418 cites W2085376544 @default.