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- W2183756036 abstract "care (HBC) plays a vital role in the care of people living with AIDS. Most carers perform their ardu ous role in adverse conditions. Yet little is known about how to facilitate contexts that maximise the effective ness of carers. This paper reviews existing research into home-based care in sub-Saharan Africa to highlight gaps in understanding and to outline new conceptual frame works for future research. Current research identifies multi-level factors that undermine carers in performing their role. These include e.g. lack of knowledge, skills and support - both at the individual and organisational levels; physical and psychological burnout; the destruc tion of household economies in the face of the demands of care; community stigma and rejection. Research and policy documents repeatedly advocate 'partnerships' or 'linkages' between carers/ patients and more power ful groupings (locally, nationally and/or internationally) as a solution to these problems. Yet they give no indi cation as how best to mobilise already over-burdened carers and their terminally ill charges. Furthermore, part nerships between poor communities and more influen tial groupings and agencies are notoriously difficult to promote and sustain. If partnerships are indeed to play such a key role in supporting carers and their patients, there is an urgent need for systematic research into the effectiveness of various partnership styles and strate gies. The concepts of bonding, bridging and linking social capital - within a framework sensitive to the in teraction between social capital and poverty - are put forward as a valuable starting point for the develop ment of better understandings of the types o f networks and partnerships most likely to support carers and their local communities." @default.
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- W2183756036 date "2004-01-01" @default.
- W2183756036 modified "2023-09-24" @default.
- W2183756036 title "based care o f people l iving with H IV/AIDS" @default.
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