FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W2188599413> ?p ?o ?g. }

• W2188599413 abstract "Introduction: The birth of a premature infant is a stressful and emotionally challenging time for parents. Families living in rural areas often have reduced access to the specialist services premature infants require, and different concerns from their metropolitan counterparts. Rural families may have to spend extended periods of time at a metropolitan centre while their child is in a neonatal intensive care unit (NICU). Regular return trips to hospital may be required for follow up. Parental experience of this unexpected event and the resultant intensive health service involvement requires further examination; most studies focus on the NICU experience. This exploratory study was undertaken from the rural paediatric allied health perspective. Because there are few accounts of rural families' experiences in the literature, this hermeneutic phenomenological qualitative study focused on the rural parent's experience of having a premature infant in a rural area during the first 12 months of the child's life. Method: Participants were selectively recruited from the case lists of paediatricians in a rural/regional hospital. Seven parents (5 mothers and 2 fathers) of premature infants consented to participate in semi-structured interviews. Interviews were of 60-90 min duration per parent, and were audiotaped and transcribed verbatim. The transcripts were analysed thematically using a phenomenological approach. Process and reflection diaries were maintained in order to provide an audit trail. Results: The participant group reflected a range of experiences. Parents described being initially shocked and then gradually adjusting to being the parent of a premature child. Three major themes emerged: (1) 'Coping through optimism' when parents consistently spoke positively about even stressful and difficult aspects of their experience; (2) 'Stoic survival' where parents did not emotionally deal with their experience, often citing others' needs as having higher priority; and (3) 'Striving for normal' when parents focussed on the aspects of their child's medical care or development that was closer to that of a full term child. Parents described feeling devastated if they felt their infant regressed or was progressing too slowly, and elated whenever a new milestone was achieved. Conclusion: Gaining insight into the experience of parents of premature infants can help health professionals ensure services more effectively meet the needs of these families. Rural families were pleased with their local services although they indicated that travelling to a metropolitan centre was extremely burdensome. While the families interviewed had access to some local specialist services, they expressed concern that if they resided in a more remote area there would be reduced access to services and greater personal strain. Further research is required to determine the experiences of Indigenous families, separated or divorced parents and families living in remote areas. Key words: experience, infant, parents, premature, qualitative." @default.
• W2188599413 created "2016-06-24" @default.
• W2188599413 creator A5020945915 @default.
• W2188599413 creator A5027917142 @default.
• W2188599413 creator A5054980034 @default.
• W2188599413 date "2010-08-20" @default.
• W2188599413 modified "2023-09-25" @default.
• W2188599413 title "Stoic survival: the journey of parenting a premature infant in the bush" @default.
• W2188599413 cites W193578709 @default.
• W2188599413 cites W1964051125 @default.
• W2188599413 cites W1965485736 @default.
• W2188599413 cites W2024016410 @default.
• W2188599413 cites W2027670811 @default.
• W2188599413 cites W2080043807 @default.
• W2188599413 cites W2085112885 @default.
• W2188599413 cites W2091464395 @default.
• W2188599413 cites W2106751155 @default.
• W2188599413 cites W2136104305 @default.
• W2188599413 cites W2171751417 @default.
• W2188599413 doi "https://doi.org/10.22605/rrh1475" @default.
• W2188599413 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/20807003" @default.
• W2188599413 hasPublicationYear "2010" @default.
• W2188599413 type Work @default.
• W2188599413 sameAs 2188599413 @default.
• W2188599413 citedByCount "5" @default.
• W2188599413 countsByYear W21885994132014 @default.
• W2188599413 countsByYear W21885994132015 @default.
• W2188599413 countsByYear W21885994132017 @default.
• W2188599413 countsByYear W21885994132020 @default.
• W2188599413 crossrefType "journal-article" @default.
• W2188599413 hasAuthorship W2188599413A5020945915 @default.
• W2188599413 hasAuthorship W2188599413A5027917142 @default.
• W2188599413 hasAuthorship W2188599413A5054980034 @default.
• W2188599413 hasBestOaLocation W21885994131 @default.
• W2188599413 hasConcept C118552586 @default.
• W2188599413 hasConcept C129047720 @default.
• W2188599413 hasConcept C142724271 @default.
• W2188599413 hasConcept C144024400 @default.
• W2188599413 hasConcept C144133560 @default.
• W2188599413 hasConcept C15744967 @default.
• W2188599413 hasConcept C159110408 @default.
• W2188599413 hasConcept C162853370 @default.
• W2188599413 hasConcept C187212893 @default.
• W2188599413 hasConcept C190248442 @default.
• W2188599413 hasConcept C19165224 @default.
• W2188599413 hasConcept C2777091541 @default.
• W2188599413 hasConcept C36289849 @default.
• W2188599413 hasConcept C512399662 @default.
• W2188599413 hasConcept C56995899 @default.
• W2188599413 hasConcept C71924100 @default.
• W2188599413 hasConcept C73282008 @default.
• W2188599413 hasConcept C85973986 @default.
• W2188599413 hasConceptScore W2188599413C118552586 @default.
• W2188599413 hasConceptScore W2188599413C129047720 @default.
• W2188599413 hasConceptScore W2188599413C142724271 @default.
• W2188599413 hasConceptScore W2188599413C144024400 @default.
• W2188599413 hasConceptScore W2188599413C144133560 @default.
• W2188599413 hasConceptScore W2188599413C15744967 @default.
• W2188599413 hasConceptScore W2188599413C159110408 @default.
• W2188599413 hasConceptScore W2188599413C162853370 @default.
• W2188599413 hasConceptScore W2188599413C187212893 @default.
• W2188599413 hasConceptScore W2188599413C190248442 @default.
• W2188599413 hasConceptScore W2188599413C19165224 @default.
• W2188599413 hasConceptScore W2188599413C2777091541 @default.
• W2188599413 hasConceptScore W2188599413C36289849 @default.
• W2188599413 hasConceptScore W2188599413C512399662 @default.
• W2188599413 hasConceptScore W2188599413C56995899 @default.
• W2188599413 hasConceptScore W2188599413C71924100 @default.
• W2188599413 hasConceptScore W2188599413C73282008 @default.
• W2188599413 hasConceptScore W2188599413C85973986 @default.
• W2188599413 hasLocation W21885994131 @default.
• W2188599413 hasLocation W21885994132 @default.
• W2188599413 hasLocation W21885994133 @default.
• W2188599413 hasOpenAccess W2188599413 @default.
• W2188599413 hasPrimaryLocation W21885994131 @default.
• W2188599413 hasRelatedWork W1526806049 @default.
• W2188599413 hasRelatedWork W1527764909 @default.
• W2188599413 hasRelatedWork W2099200384 @default.
• W2188599413 hasRelatedWork W2149191991 @default.
• W2188599413 hasRelatedWork W3114350646 @default.
• W2188599413 hasRelatedWork W3163854667 @default.
• W2188599413 hasRelatedWork W4293788786 @default.
• W2188599413 hasRelatedWork W4297088905 @default.
• W2188599413 hasRelatedWork W4297253952 @default.
• W2188599413 hasRelatedWork W4298131367 @default.
• W2188599413 isParatext "false" @default.
• W2188599413 isRetracted "false" @default.
• W2188599413 magId "2188599413" @default.
• W2188599413 workType "article" @default.