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- W2190742264 abstract "The insight in human heredity has been accelerated by the human genome project. By charting human genetic material, the project has helped to identify, localize and clarify the structure of an increasing number of genes which play a role in the origin and development of disease. This is leading to improved techniques for diagnosing disease, above all those in which genetic factors play a part. From the actual results one can predict that in the near future it will be possible to detect many of the most frequent genetic diseases early in pregnancy and at any moment thereafter. As more genes are identified, there is growing pressure to broaden existing testing opportunities and screening programmes. These programmes are increasing both the number of available tests and the volume of genetic information they generate. The emergence of the biotechnology industry increases the likelihood that these findings will be rapidly translated into widely available test kits and diagnostic products. The potential for generating all of this genetic information about individuals raises serious questions of informed consent, confidentiality and discrimination. Numerous factors effect the eventual use of genetic tests, not in the least the value of the test, the price, and the precision. Overshadowing these factors however, may be the attitude of the people towards genetic testing. How will they perceive such tests? How will they view and evaluate the implications? Normative frameworks on genetic screening and testing in bioethics literature consider testing for recessive disorders at an appropriate moment as an important criterium (Andrews, 1994; Council of Europe, 1992; Danish Council, 1993; Nuffield Council 1993). Students are an important possible target group for information about genetic risks and tests. They are the adults of tomorrow and they are the potential users of genetic tests. This means that it is important to see what their knowledge, beliefs, opinions and attitudes concerning genetics and genetic tests are. This article investigates the perception of adolescents toward carrier testing for cystic fibrosis. Cystic fibrosis is the most common life-shortening recessive disorder affecting" @default.
- W2190742264 created "2016-06-24" @default.
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- W2190742264 date "1999-01-01" @default.
- W2190742264 modified "2023-09-24" @default.
- W2190742264 title "ADOLESCENTS AND CARRIER TESTING Attitudes and Ethical Presuppositions" @default.
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