Matches in SemOpenAlex for { <https://semopenalex.org/work/W2243399060> ?p ?o ?g. }
Showing items 1 to 96 of
96
with 100 items per page.
- W2243399060 endingPage "338" @default.
- W2243399060 startingPage "333" @default.
- W2243399060 abstract "The exposure of clinicians to patients with rare gastrointestinal diseases is limited. This hurts clinical studies, which impedes accumulation of scientific knowledge on the natural disease course, treatment outcomes and prognosis in these patients. An excellent method to detect patterns on an aggregate level that would not be possible to discover in individual cases, is a registry study. This paper aims to describe a template to create a successful international registry for rare diseases. We focus mainly on rare hepatic diseases, but lessons from this paper serve other fields in medicine, as well." @default.
- W2243399060 created "2016-06-24" @default.
- W2243399060 creator A5009495645 @default.
- W2243399060 creator A5018223554 @default.
- W2243399060 creator A5034309819 @default.
- W2243399060 creator A5041223207 @default.
- W2243399060 creator A5044485746 @default.
- W2243399060 creator A5076739762 @default.
- W2243399060 date "2015-11-13" @default.
- W2243399060 modified "2023-10-17" @default.
- W2243399060 title "Creating an effective clinical registry for rare diseases" @default.
- W2243399060 cites W1071546559 @default.
- W2243399060 cites W1479884833 @default.
- W2243399060 cites W1531310931 @default.
- W2243399060 cites W1862351738 @default.
- W2243399060 cites W1924821402 @default.
- W2243399060 cites W1984765273 @default.
- W2243399060 cites W1987523828 @default.
- W2243399060 cites W1993463469 @default.
- W2243399060 cites W1996146362 @default.
- W2243399060 cites W2010311664 @default.
- W2243399060 cites W2032058959 @default.
- W2243399060 cites W2041503118 @default.
- W2243399060 cites W2050678963 @default.
- W2243399060 cites W2083554107 @default.
- W2243399060 cites W2084728935 @default.
- W2243399060 cites W2093292173 @default.
- W2243399060 cites W2111854989 @default.
- W2243399060 cites W2120488567 @default.
- W2243399060 cites W2121500708 @default.
- W2243399060 cites W2126809771 @default.
- W2243399060 cites W2127325275 @default.
- W2243399060 cites W2131379299 @default.
- W2243399060 cites W2141267824 @default.
- W2243399060 cites W2278700271 @default.
- W2243399060 cites W2397457170 @default.
- W2243399060 cites W2432742954 @default.
- W2243399060 cites W3021092633 @default.
- W2243399060 cites W4250968058 @default.
- W2243399060 doi "https://doi.org/10.1177/2050640615618042" @default.
- W2243399060 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/4924439" @default.
- W2243399060 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/27403298" @default.
- W2243399060 hasPublicationYear "2015" @default.
- W2243399060 type Work @default.
- W2243399060 sameAs 2243399060 @default.
- W2243399060 citedByCount "30" @default.
- W2243399060 countsByYear W22433990602018 @default.
- W2243399060 countsByYear W22433990602019 @default.
- W2243399060 countsByYear W22433990602020 @default.
- W2243399060 countsByYear W22433990602021 @default.
- W2243399060 countsByYear W22433990602022 @default.
- W2243399060 countsByYear W22433990602023 @default.
- W2243399060 crossrefType "journal-article" @default.
- W2243399060 hasAuthorship W2243399060A5009495645 @default.
- W2243399060 hasAuthorship W2243399060A5018223554 @default.
- W2243399060 hasAuthorship W2243399060A5034309819 @default.
- W2243399060 hasAuthorship W2243399060A5041223207 @default.
- W2243399060 hasAuthorship W2243399060A5044485746 @default.
- W2243399060 hasAuthorship W2243399060A5076739762 @default.
- W2243399060 hasBestOaLocation W22433990601 @default.
- W2243399060 hasConcept C142724271 @default.
- W2243399060 hasConcept C177713679 @default.
- W2243399060 hasConcept C2778959093 @default.
- W2243399060 hasConcept C2779134260 @default.
- W2243399060 hasConcept C2779701055 @default.
- W2243399060 hasConcept C71924100 @default.
- W2243399060 hasConceptScore W2243399060C142724271 @default.
- W2243399060 hasConceptScore W2243399060C177713679 @default.
- W2243399060 hasConceptScore W2243399060C2778959093 @default.
- W2243399060 hasConceptScore W2243399060C2779134260 @default.
- W2243399060 hasConceptScore W2243399060C2779701055 @default.
- W2243399060 hasConceptScore W2243399060C71924100 @default.
- W2243399060 hasIssue "3" @default.
- W2243399060 hasLocation W22433990601 @default.
- W2243399060 hasLocation W22433990602 @default.
- W2243399060 hasLocation W22433990603 @default.
- W2243399060 hasLocation W22433990604 @default.
- W2243399060 hasOpenAccess W2243399060 @default.
- W2243399060 hasPrimaryLocation W22433990601 @default.
- W2243399060 hasRelatedWork W1839838842 @default.
- W2243399060 hasRelatedWork W1980950179 @default.
- W2243399060 hasRelatedWork W2076985335 @default.
- W2243399060 hasRelatedWork W2090704721 @default.
- W2243399060 hasRelatedWork W2124125394 @default.
- W2243399060 hasRelatedWork W2315324320 @default.
- W2243399060 hasRelatedWork W2991533465 @default.
- W2243399060 hasRelatedWork W3111762934 @default.
- W2243399060 hasRelatedWork W3160094038 @default.
- W2243399060 hasRelatedWork W4367481442 @default.
- W2243399060 hasVolume "4" @default.
- W2243399060 isParatext "false" @default.
- W2243399060 isRetracted "false" @default.
- W2243399060 magId "2243399060" @default.
- W2243399060 workType "article" @default.