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- W2275431071 abstract "8231 Background: Lymphedema is a potentially severe and debilitating side effect of cancer surgery and radiation therapy. It adversely affects an estimated 10 to 30% of cancer survivors in both short-term and long-term discomfort, chronic pain, debility, and loss of function in the affected limb. Living with lymphedema presents many challenges, both physically and psychologically. Stress and frustration are compounded by the lack of or conflicting information on cause and therapy. Increased levels of anxiety and depression are often caused by the challenges faced in the workplace, in social situations, and at home. Patients struggle with body image, clothing, limitations in the ability to comfortably use a computer and of impaired sexual function. Optimal management of chronic lymphedema remains unclear at this time. Improved treatments and specialty clinics are being developed at this time. Methods: A pilot questionnaire was developed in September 2002 to evaluate the perceived utility of Living with Lymphedema on CancerSupportiveCare.com. Our website serves on average 2000 pages per month about lymphedema to interested patients, and healthcare providers to over 80 USA and non USA countries (number of hits is not included - the term hit is misleading, e.g. 100 graphics + 1 web page = 101 hits). Results: Online Questionnaire September 2002 –November 2003 146 were patients (88.5%) and 19 professionals (11.5%). Conclusion: By participating in our project a worldwide audience of patients and healthcare personnel derived significant and useful information and insight into lymphedema an often underreported complication of cancer treatment. This Internet-based approach facilitates better understanding of lymphedema through interactions between patients and specialists in a non - threatening and anonymous forum, and is associated with a very high level of patient satisfaction and overall quality of life. No significant financial relationships to disclose." @default.
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- W2275431071 date "2004-07-15" @default.
- W2275431071 modified "2023-09-23" @default.
- W2275431071 title "Living with lymphedema - A cancer supportive care Website project" @default.
- W2275431071 doi "https://doi.org/10.1200/jco.2004.22.90140.8231" @default.
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