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- W2278752488 abstract "Background: Despite the well documented benefits of providing people with written health information, there is a growing body of evidence indicating people who have aphasia are poorly informed about both their stroke and aphasia. Although extensive research has been conducted into stroke education, limited research has specifically investigated the provision of written health information to people with aphasia. Aims: This study aimed to investigate if people with aphasia recalled receiving written information about stroke and aphasia. Subsequent aims were to determine if reported receipt of stroke and aphasia information was related to participant characteristics such as aphasia severity, reading ability and time post-stroke. This study also aimed to gain insight into where people with aphasia sourced written stroke and aphasia information and which health professionals provided this information. Methods & Procedures: This article reports on a ten-item verbal questionnaire that was conducted as part of larger project with 40 adults with aphasia following stroke. Participants with a range of aphasia severities, reading abilities and time post-onsets were recruited from university clinics and seven hospitals in Queensland, Australia. Descriptive statistics have been used to describe participant responses to questionnaire items. The relationship between participant responses and participant characteristics were explored using the Mann Whitney U and Person’s Chi Square tests for non parametric data. Participant’s comments have also been catagorised. Outcomes & Results: Only 14 participants (36%) indicated that they received written information about both stroke and aphasia. Findings indicated that receipt of stroke information did not equate to receipt of aphasia information with fewer participants reporting they received written aphasia information (49%) compared to written stroke information (67%). There was no significant relationship between reported receipt of information and Written stroke and aphasia information 4 time post-stroke, aphasia severity, reading ability, age, years of education, or gender. Participant comments either reflected the ineffective provision of written information, with many participants commenting about the inappropriate complexity of written health information received, or reflected participants’ poor understanding or no understanding of aphasia. The rehabilitation group setting was the main location for written stroke and aphasia information provision, with speech pathologists most frequently being identified as the health professional to provide this information. Conclusions: The majority of participants reported receiving no written information about aphasia. Routine provision of appropriately formatted health information and improved access to the health professionals and services which provide information are two strategies for more successful stroke and aphasia education. Written stroke and aphasia information 5" @default.
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- W2278752488 date "2010-01-01" @default.
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- W2278752488 title "Do people with aphasia want written information? A verbal survey exploring preferences for when and how to provide stroke and aphasia information" @default.
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