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- W2297807711 abstract "Patient-reported outcome (PRO) measures provide a valuable window into how patients with juvenile idiopathic arthritis and their parents perceive their functioning, quality of life, and medication side effects in the context of their disease and treatment. Momentum behind adoption of PRO measures is increasing as these patient-relevant tools capture information pertinent to taking a patient-centered approach to health care and research. This article reviews the clinical and research utility of obtaining PROs across domains applicable to the experience of juvenile idiopathic arthritis and summarizes available self-report and parent-proxy PRO measures. Current challenges and limitations of PRO usage are discussed." @default.
- W2297807711 created "2016-06-24" @default.
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- W2297807711 date "2016-05-01" @default.
- W2297807711 modified "2023-10-18" @default.
- W2297807711 title "Using Patient-Reported Outcome Measures to Capture the Patient's Voice in Research and Care of Juvenile Idiopathic Arthritis" @default.
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- W2297807711 doi "https://doi.org/10.1016/j.rdc.2016.01.004" @default.
- W2297807711 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/4853816" @default.
- W2297807711 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/27133493" @default.
- W2297807711 hasPublicationYear "2016" @default.
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