Matches in SemOpenAlex for { <https://semopenalex.org/work/W2323151563> ?p ?o ?g. }
Showing items 1 to 87 of
87
with 100 items per page.
- W2323151563 abstract "BACKGROUND: (blind field). METHODS: Surveys of patients, caregivers and health care providers were performed by us and others to help identify the patient experience and the suggested means to provide support and improve quality of life. The people and processes needed to provide a comprehensive and experience are discussed. RESULTS: Patients perceive several crises along the treatment continuum from shock and the unknown with the initial diagnosis, anticipation and anxiety with every new scan, defeat and limitations with disease progression and terminal expectation towards the end of life. Their desires include honesty, compassion, hope, communication and support services. Continuous follow-up with them and their caregivers minimizes the fear of abandonment with a nurse-navigator being a key person who provides personalized support. The Neuro-Oncologist and multidisciplinary tumor board drive the standard care, with clinical trials providing additional hope. Process improvements, along with symptom management teams comprised of palliative care professionals, can provide maximal services. CONCLUSIONS: A truly multidisciplinary patient and family centered approach needs to be comprehensive, continuous, structured and responsive. A tumor board, neuro-oncologists and nurse navigators are key elements. Palliative care should be renamed supportive care” and should be utilized along the care continuum. The authors suggest that patients hope and quality of life is optimized with this approach. SECONDARY CATEGORY: n/a." @default.
- W2323151563 created "2016-06-24" @default.
- W2323151563 creator A5013384985 @default.
- W2323151563 creator A5026869480 @default.
- W2323151563 creator A5042189116 @default.
- W2323151563 creator A5059698282 @default.
- W2323151563 creator A5069699492 @default.
- W2323151563 date "2014-07-01" @default.
- W2323151563 modified "2023-09-24" @default.
- W2323151563 title "BRAIN TUMOR CARE THROUGH THE PATIENT'S EYES -- THE VALUE OF A COMPREHENSIVE BRAIN TUMOR CENTER" @default.
- W2323151563 doi "https://doi.org/10.1093/neuonc/nou209.31" @default.
- W2323151563 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/4144646" @default.
- W2323151563 hasPublicationYear "2014" @default.
- W2323151563 type Work @default.
- W2323151563 sameAs 2323151563 @default.
- W2323151563 citedByCount "0" @default.
- W2323151563 crossrefType "journal-article" @default.
- W2323151563 hasAuthorship W2323151563A5013384985 @default.
- W2323151563 hasAuthorship W2323151563A5026869480 @default.
- W2323151563 hasAuthorship W2323151563A5042189116 @default.
- W2323151563 hasAuthorship W2323151563A5059698282 @default.
- W2323151563 hasAuthorship W2323151563A5069699492 @default.
- W2323151563 hasBestOaLocation W23231515631 @default.
- W2323151563 hasConcept C118552586 @default.
- W2323151563 hasConcept C144024400 @default.
- W2323151563 hasConcept C154945302 @default.
- W2323151563 hasConcept C15744967 @default.
- W2323151563 hasConcept C159110408 @default.
- W2323151563 hasConcept C176777502 @default.
- W2323151563 hasConcept C17744445 @default.
- W2323151563 hasConcept C199539241 @default.
- W2323151563 hasConcept C22467394 @default.
- W2323151563 hasConcept C2777293324 @default.
- W2323151563 hasConcept C2777432744 @default.
- W2323151563 hasConcept C2779951463 @default.
- W2323151563 hasConcept C2994186709 @default.
- W2323151563 hasConcept C36289849 @default.
- W2323151563 hasConcept C41008148 @default.
- W2323151563 hasConcept C558461103 @default.
- W2323151563 hasConcept C71924100 @default.
- W2323151563 hasConcept C77805123 @default.
- W2323151563 hasConceptScore W2323151563C118552586 @default.
- W2323151563 hasConceptScore W2323151563C144024400 @default.
- W2323151563 hasConceptScore W2323151563C154945302 @default.
- W2323151563 hasConceptScore W2323151563C15744967 @default.
- W2323151563 hasConceptScore W2323151563C159110408 @default.
- W2323151563 hasConceptScore W2323151563C176777502 @default.
- W2323151563 hasConceptScore W2323151563C17744445 @default.
- W2323151563 hasConceptScore W2323151563C199539241 @default.
- W2323151563 hasConceptScore W2323151563C22467394 @default.
- W2323151563 hasConceptScore W2323151563C2777293324 @default.
- W2323151563 hasConceptScore W2323151563C2777432744 @default.
- W2323151563 hasConceptScore W2323151563C2779951463 @default.
- W2323151563 hasConceptScore W2323151563C2994186709 @default.
- W2323151563 hasConceptScore W2323151563C36289849 @default.
- W2323151563 hasConceptScore W2323151563C41008148 @default.
- W2323151563 hasConceptScore W2323151563C558461103 @default.
- W2323151563 hasConceptScore W2323151563C71924100 @default.
- W2323151563 hasConceptScore W2323151563C77805123 @default.
- W2323151563 hasLocation W23231515631 @default.
- W2323151563 hasLocation W23231515632 @default.
- W2323151563 hasOpenAccess W2323151563 @default.
- W2323151563 hasPrimaryLocation W23231515631 @default.
- W2323151563 hasRelatedWork W139079413 @default.
- W2323151563 hasRelatedWork W168266302 @default.
- W2323151563 hasRelatedWork W1874122173 @default.
- W2323151563 hasRelatedWork W1969358013 @default.
- W2323151563 hasRelatedWork W2052520929 @default.
- W2323151563 hasRelatedWork W2116958000 @default.
- W2323151563 hasRelatedWork W2184889603 @default.
- W2323151563 hasRelatedWork W2277302834 @default.
- W2323151563 hasRelatedWork W2308625664 @default.
- W2323151563 hasRelatedWork W2346975184 @default.
- W2323151563 hasRelatedWork W2413382174 @default.
- W2323151563 hasRelatedWork W2518229754 @default.
- W2323151563 hasRelatedWork W2772735060 @default.
- W2323151563 hasRelatedWork W2799583283 @default.
- W2323151563 hasRelatedWork W2804081768 @default.
- W2323151563 hasRelatedWork W2809870062 @default.
- W2323151563 hasRelatedWork W2810581386 @default.
- W2323151563 hasRelatedWork W3128045816 @default.
- W2323151563 hasRelatedWork W3170464176 @default.
- W2323151563 hasRelatedWork W2022508208 @default.
- W2323151563 isParatext "false" @default.
- W2323151563 isRetracted "false" @default.
- W2323151563 magId "2323151563" @default.
- W2323151563 workType "article" @default.