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- W2486772501 abstract "Pediatric heart transplantation occurs in a context characterized by high levels of risk and uncertainty, which necessitates a strong family-centered trust relationship with clinicians. Pediatric patients and their families are burdened with multiple difficult decisions, both medical and ethical, and require support as they go through the process of decision-making. The challenge for all parties is to determine the child’s best interest from a medical, physical, emotional, developmental, and psychosocial perspective, in order to provide a child who is a high-risk transplant candidate not only with an option for survival, but also with options for an acceptable quality of life within their life circumstances, with or without transplantation. This can be achieved through a commitment to epistemic humility and a strong, family-centered trust relationship." @default.
- W2486772501 created "2016-08-23" @default.
- W2486772501 creator A5066952814 @default.
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- W2486772501 date "2016-01-01" @default.
- W2486772501 modified "2023-09-28" @default.
- W2486772501 title "The Ethics of Uncertainty, Risk, and Trust in Pediatric Heart Transplantation" @default.
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- W2486772501 doi "https://doi.org/10.1007/978-3-319-29185-7_14" @default.
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