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• W2487697652 abstract "The study by Shah et al. [1] in this issue of the European Respiratory Journal presents data from the largest study of adults with primary ciliary dyskinesia (PCD) described up to date. It asks important questions relating to the phenotype and prognosis of this rare disease. The article describes the practices of a single UK PCD centre, and since the patterns of referral and follow-up vary between clinics, is not representative of all adults with PCD. However, the data represent a wealth of clinical experiences and give us pointers for further studies. PCD is no longer a childhood disease and standards of care should be established from birth to late adulthood <http://ow.ly/sORE300ZXI3> All authors participate in the network of COST Action BEAT-PCD: Better Evidence to Advance Therapeutic options for PCD (BM 1407). C.E. Kuehni, M. Goutaki and J.S. Lucas are members of the European Respiratory Society Task Force for PCD Diagnostics (ERS TF-2014-04). The views expressed in this manuscript do not reflect official views of these collaborations." @default.
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• W2487697652 date "2016-07-31" @default.
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• W2487697652 title "Primary ciliary dyskinesia: the patients grow up" @default.
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• W2487697652 doi "https://doi.org/10.1183/13993003.01098-2016" @default.
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