Matches in SemOpenAlex for { <https://semopenalex.org/work/W2580003579> ?p ?o ?g. }
Showing items 1 to 82 of
82
with 100 items per page.
- W2580003579 abstract "OBJECTIVE: The objective of the parent study was to test the effectiveness of an online patient-driven community to improve epilepsy self-management behaviors.BACKGROUND: Since digital health tools offer an alternative solution to traditional barriers to care (distance, time constraints, cost), this study sought to test the effectiveness of an existing online patient community to improve patient self-management. The digital platform, hosted on PatientsLikeMe, included an online forum community, self-tracking tools for seizures, side effects, and medication compliance, and video educational modules. All of these features were available through desktop, tablet, and mobile devices to any patient with internet access at any time of day.DESIGN/METHODS: For the study, 249 Veteran patients with epilepsy consented and entered the platform; 92 patients completed six weeks of participation. These patients completed validated questionnaires of epilepsy self-management (ESMS) and self-efficacy (ESES) prior to entering the platform and at the end of the study period. For these ‘completers’, there was a statistically significant improvement in both outcome metrics (ESMS total 139.7 to 142.7, p=0.02 and ESES total 244.2 to 254.4, p=0.02) in a pre-post comparison. The greatest impact was observed for an information management subscale (ESMS-information management 20.3 to 22.4, p<0.001).CONCLUSIONS: This study demonstrated that an internet-based health platform was feasible to implement in a cohort of patients with epilepsy and demonstrated a positive impact on validated self-management metrics. Since traditional, in-person self-management and education programs face significant access barriers, this digital approach promises an improved patient experience and compliance. These types of platforms can be readily accessed by anyone with internet connectivity, across multiple device types, and at an extremely low cost. Thus, these types of scalable and flexible programs should be viewed as a promising to new approach to tackling epilepsy stigma and limited access to care.Study Supported by: UCB Inc. Disclosure: Dr. Hixson has received personal compensation for activities with Lumetra Healthcare Solutions as consultant." @default.
- W2580003579 created "2017-02-03" @default.
- W2580003579 creator A5048481245 @default.
- W2580003579 date "2016-04-05" @default.
- W2580003579 modified "2023-09-28" @default.
- W2580003579 title "Use of a Digital Self-Management Platform for Improving Access in Epilepsy Patients (I14.004)" @default.
- W2580003579 hasPublicationYear "2016" @default.
- W2580003579 type Work @default.
- W2580003579 sameAs 2580003579 @default.
- W2580003579 citedByCount "0" @default.
- W2580003579 crossrefType "journal-article" @default.
- W2580003579 hasAuthorship W2580003579A5048481245 @default.
- W2580003579 hasConcept C110875604 @default.
- W2580003579 hasConcept C118552586 @default.
- W2580003579 hasConcept C119857082 @default.
- W2580003579 hasConcept C126322002 @default.
- W2580003579 hasConcept C136764020 @default.
- W2580003579 hasConcept C151730666 @default.
- W2580003579 hasConcept C15744967 @default.
- W2580003579 hasConcept C160735492 @default.
- W2580003579 hasConcept C162324750 @default.
- W2580003579 hasConcept C1862650 @default.
- W2580003579 hasConcept C19417346 @default.
- W2580003579 hasConcept C2775936607 @default.
- W2580003579 hasConcept C2776933761 @default.
- W2580003579 hasConcept C2777267654 @default.
- W2580003579 hasConcept C2778186239 @default.
- W2580003579 hasConcept C2780433410 @default.
- W2580003579 hasConcept C41008148 @default.
- W2580003579 hasConcept C50522688 @default.
- W2580003579 hasConcept C71924100 @default.
- W2580003579 hasConcept C72563966 @default.
- W2580003579 hasConcept C86803240 @default.
- W2580003579 hasConceptScore W2580003579C110875604 @default.
- W2580003579 hasConceptScore W2580003579C118552586 @default.
- W2580003579 hasConceptScore W2580003579C119857082 @default.
- W2580003579 hasConceptScore W2580003579C126322002 @default.
- W2580003579 hasConceptScore W2580003579C136764020 @default.
- W2580003579 hasConceptScore W2580003579C151730666 @default.
- W2580003579 hasConceptScore W2580003579C15744967 @default.
- W2580003579 hasConceptScore W2580003579C160735492 @default.
- W2580003579 hasConceptScore W2580003579C162324750 @default.
- W2580003579 hasConceptScore W2580003579C1862650 @default.
- W2580003579 hasConceptScore W2580003579C19417346 @default.
- W2580003579 hasConceptScore W2580003579C2775936607 @default.
- W2580003579 hasConceptScore W2580003579C2776933761 @default.
- W2580003579 hasConceptScore W2580003579C2777267654 @default.
- W2580003579 hasConceptScore W2580003579C2778186239 @default.
- W2580003579 hasConceptScore W2580003579C2780433410 @default.
- W2580003579 hasConceptScore W2580003579C41008148 @default.
- W2580003579 hasConceptScore W2580003579C50522688 @default.
- W2580003579 hasConceptScore W2580003579C71924100 @default.
- W2580003579 hasConceptScore W2580003579C72563966 @default.
- W2580003579 hasConceptScore W2580003579C86803240 @default.
- W2580003579 hasLocation W25800035791 @default.
- W2580003579 hasOpenAccess W2580003579 @default.
- W2580003579 hasPrimaryLocation W25800035791 @default.
- W2580003579 hasRelatedWork W1976849900 @default.
- W2580003579 hasRelatedWork W2108399049 @default.
- W2580003579 hasRelatedWork W2168459847 @default.
- W2580003579 hasRelatedWork W2505350312 @default.
- W2580003579 hasRelatedWork W2801760223 @default.
- W2580003579 hasRelatedWork W2811254070 @default.
- W2580003579 hasRelatedWork W2908996402 @default.
- W2580003579 hasRelatedWork W2924993635 @default.
- W2580003579 hasRelatedWork W2943784141 @default.
- W2580003579 hasRelatedWork W2944092567 @default.
- W2580003579 hasRelatedWork W2969184159 @default.
- W2580003579 hasRelatedWork W2979476416 @default.
- W2580003579 hasRelatedWork W3045740207 @default.
- W2580003579 hasRelatedWork W3081270757 @default.
- W2580003579 hasRelatedWork W3154359472 @default.
- W2580003579 hasRelatedWork W3164503126 @default.
- W2580003579 hasRelatedWork W3167767267 @default.
- W2580003579 hasRelatedWork W148519796 @default.
- W2580003579 hasRelatedWork W393153731 @default.
- W2580003579 hasRelatedWork W75539271 @default.
- W2580003579 hasVolume "86" @default.
- W2580003579 isParatext "false" @default.
- W2580003579 isRetracted "false" @default.
- W2580003579 magId "2580003579" @default.
- W2580003579 workType "article" @default.