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• W2580331383 abstract "COPD is poorly understood by the general public, and those diagnosed with the condition can face stigma from medical professionals because they are held responsible for their condition (eg, for smoking). In an effort to challenge this stigma, artist Josie Vallely works in collaboration with people with COPD to create visual narratives, which attempt to portray what it is like to live with COPD. Before becoming an artist, Vallely studied medicine for 3 years. Despite enjoying working with patients, and being concerned about health inequalities, she realised that becoming a doctor was not for her. “I was interested in people's stories. I was really passionate about the politics of health care, but I wasn't as passionate about the science”, she says. Vallely left medical school to complete a foundation art course and finished her degree with The Open University, during which time she studied children's literature—in particular, books that used abstract images to help teenagers deal with grief and mental health problems. “These books led me to start exploring what visuals bring to our understanding of health narrative and how they can tap into the more complex aspects of human emotion.” She went on to complete a master's degree in communication design at The Glasgow School of Art and now focuses on the “collaboration and interconnection between community health and narrative”. Throughout Vallely's medical and art education, COPD was a condition that was close to her heart, “COPD seemed to be to a really clear example of health inequalities in action”, explains Vallely. She wanted to explore medical professionals' attitudes towards COPD: “I read an article about doctor's attitudes towards smokers with COPD, which found that most doctors agreed that current smokers with COPD were the most ‘at fault’ for their illness. 80% of doctors ranked smokers with COPD more to blame for their illness than smokers with angina. This led me to think about all the factors that affect how doctors view people with COPD, such as class, agency, and power, and it struck me that what was missing from the conversation was an empathy with people with COPD that takes account of all of these things.” Vallely was interested in making works of art in collaboration with people who have COPD, rather than about them. She began by forging links with peer-led groups of people with COPD. She initially contacted individuals through the British Lung Foundation's patient support form. “Only three people sent information back, but this was a good learning experience for me; I realised that it was a big ask for people to spend time sharing their experiences with me”, Vallely recalls. She then focused on working with individuals. Derek Cummings, a blogger who shares his experiences of COPD, offered to work with Vallely. “When we spoke, Derek touched on some of the darker aspects of living with the condition that he maybe didn't allude to in his blog”, says Vallely. “He also had some lovely metaphorical links in his writing to landscapes and mountains. This led to a body of work using these metaphors to explore his illness experience. The aim of the landscapes is to provoke a universal response and prime people to be open to the emotions of Derek's narrative and leave their prejudices behind.” Vallely initially created large, abstract drawings, which were then brought together in a book, Derek's Story. She chose to create a book because this medium suited the personal experience that she wanted people to have when viewing the paintings (ie, a smaller scale, more private experience). The book also contains quotes from Derek, which accompany the images. “The book has origami-style binding, with layers that mimic the layers of understanding of COPD. The outer pages come through the middle of the book and explain the epidemiology of COPD and what it's like to live with COPD from a clinical perspective. These pages hold together the more abstracted narrative work, which makes up the bulk of the book”, explains Vallely. The work was first viewed by Derek Cummings, who received his own copies of the prints. It was then exhibited at the Speirs Centre, Alloa, Scotland. Here it was viewed by the Breatheasy group—a peer-led support group for people with long-term lung conditions. Vallely explains how helpful the feedback was from these events, “It was always a bit problematic for me that I was presenting this work back to the people it was meant to represent”, she recalls. “However, at the exhibition, I overheard two men in the corner of the room looking at the prints; while looking at a dark landscape, one said to the other—‘that's exactly how I feel’. That made all the work worthwhile.” Since then, Vallely's work was on display at the Prescriptions exhibition (Beaney House of Art & Knowledge, Canterbury, Kent, UK) from April 21 to Sept 25, 2016. Vallely is now thinking about the next steps for this project, “COPD is of personal interest to me because it is not on the political agenda. It is a disease rooted in inequality that renders people invisible. I am going to keep exploring how I can contribute to raising awareness of the reality of the condition”, she says. “I'm keen to hear from physicians who might want to learn more about my work, collaborate on a project, or exhibit the prints—I think this is an important conversation that needs to be continued.”" @default.
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• W2580331383 date "2017-02-01" @default.
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• W2580331383 title "Artist uses patients' experiences to create COPD landscapes" @default.
• W2580331383 doi "https://doi.org/10.1016/s2213-2600(17)30013-9" @default.
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