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- W2594156987 abstract "Stroke is often sudden and unexpected, but what follows is often a long-termtrajectory, marked by uncertainties. The ‘suddenness’ and ‘unexpectedness’ of strokemay be felt particularly by working age individuals and people around them, giventhat stroke is commonly considered a disease of old age and/or caused by a sedentarylifestyle. Almost all individuals who had a stroke at a ‘younger’ age return home, asthey tend to make a better recovery trajectory compared to ‘older’ individuals, butalso due to the lack of other appropriate options. Once home, they are usuallysupported by family members, with their spouse often providing the bulk of support.In my thesis, I explore experiences of spouses of people who have had a strokewhilst in their working age (29-54). Drawing on qualitative data collected throughpolicy document analysis, ethnographic interviews and participant observation inVictoria, Australia, I challenge the notion of ‘carers’ as constructed in currenthealthcare and policy discourses. While policy and healthcare practice assume that thespouses of people who had a stroke will suddenly become ‘carers’, and that they existonly within the ‘care relationship’ – a self-contained unit – my participants’ accountsilluminate that the everyday lives of ‘carers’ are much more complex. The onset ofstroke fractures participants’ assumed coherence in life, and their various socialrelationships. Their participation in everyday practices of ‘informal care’ wasone of many interwoven, yet sometimes conflicting, identity performances. Bydelineating how their fractured lives, in a network of various relationships, wereconstantly reformed and restructured, I aim to generate a basis on which serviceproviders, healthcare practitioners, policy makers and members of the wider societycan engage in a constructive and critical discussion towards creating a ‘caring society’." @default.
- W2594156987 created "2017-03-16" @default.
- W2594156987 creator A5057061117 @default.
- W2594156987 date "2017-03-01" @default.
- W2594156987 modified "2023-09-24" @default.
- W2594156987 title "Fractured lives : partnering younger people with stroke" @default.
- W2594156987 doi "https://doi.org/10.4225/03/58b61608ad5d0" @default.
- W2594156987 hasPublicationYear "2017" @default.
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