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• W2750074399 abstract "Aim: To understand stakeholders’ views on data sharing in multicenter comparative effectiveness research studies and the value of privacy-protecting methods. Materials & methods: Semistructured interviews with five US stakeholder groups. Results: We completed 11 interviews, involving patients (n = 15), researchers (n = 10), Institutional Review Board and regulatory staff (n = 3), multicenter research governance experts (n = 2) and healthcare system leaders (n = 4). Perceptions of the benefits and value of research were the strongest influences toward data sharing; cost and security risks were primary influences against sharing. Privacy-protecting methods that share summary-level data were acknowledged as being appealing, but there were concerns about increased cost and potential loss of research validity. Conclusion: Stakeholders were open to data sharing in multicenter studies that offer value and minimize security risks." @default.
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• W2750074399 date "2017-09-01" @default.
• W2750074399 modified "2023-10-14" @default.
• W2750074399 title "Stakeholders’ views on data sharing in multicenter studies" @default.
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• W2750074399 doi "https://doi.org/10.2217/cer-2017-0009" @default.
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