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- W2765332496 abstract "Background Siblings of people with intellectual and developmental disabilities (IDD) often assume key roles to support their brothers and sisters. For people with more significant support needs, siblings may undertake additional roles and responsibilities throughout their lives. The purpose of the present study was to identify and describe the roles of adult siblings who have a brother or sister with severe IDD. Method Seventy‐nine adult siblings from 19 to 72 years of age completed an online survey with open‐ended questions about the roles they play in their relationships with their brother or sister. Results Thematic analysis resulted in identification of several roles including caregiver, friend (social partner), advocate, legal representative, sibling (teacher/role model), leisure planner and informal service coordinator. Conclusion Siblings assume key roles in the lives of people with IDD and need support from family and professionals to perform these roles." @default.
- W2765332496 created "2017-11-10" @default.
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- W2765332496 date "2017-10-24" @default.
- W2765332496 modified "2023-10-14" @default.
- W2765332496 title "The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities" @default.
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- W2765332496 doi "https://doi.org/10.1111/jar.12421" @default.
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