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- W2766274344 abstract "To develop a patient-reported questionnaire, measuring the severity of Chronic Pruritus (CP) and its impact on health-related quality of life (HRQoL). A three-step approach was followed: (1) a Conceptual Framework (CF) was developed using a systematic literature review and experts’ interviews, to render the relevant domains for severity and HRQoL; (2) the CF was updated following Focus Groups with 19 patients suffering from CP (underlying skin condition: psoriasis, atopic dermatitis, scalp seborrheic dermatitis, urticaria or sine materia in elderly people); participants’ verbatim were textually reported into transcripts, which were analyzed using qualitative content analyses to understand how patients suffering from Chronic Pruritus perceived the severity of CP and its impact on health-related quality of life (HRQoL); (3) a pool of items was generated for each domain of interest, and their comprehensibility was tested during cognitive debriefing with patients (semi-structured interviews; n=21 additional patients). 155 articles were reviewed to develop the preliminary CF addressing 16 domains of HRQoL and 7 of severity, which was clinically validated by 2 medical experts. Patients’ verbatim showed some relevant differences on severity, between clinical and patients’ perspectives in terms of (i) intensity of itch, (ii) duration and (iii) extension. Moreover, sub-domains of interest for HRQoL were revealed: sleep and fatigue, coping and anticipation, sexual life, emotions and cognitions, concentration, daily activities, cognitions attributed to others, social relations, and time spent. A preliminary version of the questionnaire was drafted and refined after cognitive debriefing sessions. The final version includes 50 items. A first version of this patient-reported questionnaire was developed following international guidelines and namely, using patients’ interviews. This questionnaire will measure the severity of CP and its impact on HRQoL in a comprehensive and clinically sound manner." @default.
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- W2766274344 date "2017-10-01" @default.
- W2766274344 modified "2023-09-27" @default.
- W2766274344 title "Development of A Patient-Reported Questionnaire In Patients With Chronic Pruritus" @default.
- W2766274344 doi "https://doi.org/10.1016/j.jval.2017.08.2406" @default.
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