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• W2770434960 abstract "Research following the terrorist attacks July 22nd 2011 has been especially challenging, due to the extreme nature of the events and the trauma for those involved; both directly as victims and indirectly as family, relatives and friends. In this anthology, challenging questions and experiences related to studies conducted in the years since 2011 are presented and discussed. The aim of this publication is to draw attention to important questions related to research ethics, and to highlight principles for respect, justice and positive consequences. The book shows the relevance of conducting research in order to manage the consequences and understand underlying explanations for such extreme events, but also reveal that both study participation and exposure for research findings may be a burden for those involved.  Among the questions discussed are the following: How can we assure that each individual is treated with necessary respect both before, during and after study participation How can we assure an informed signed consent from the participants, given the situation they are facing In which way is research important, and what level of risk is acceptable? In addition, challenges related to sharing of sensitive research data and publication of results are also discussed.Even though the questions raised in this anthology stem from the extreme events of July 22nd, they are considered relevant in general for research in involving human subjects. The anthology is edited by Vidar Enebakk, Helene Ingierd og Nils Olav Refsdal; with contributions from Grete Dyb, Kari Dyregrov, Ragnar Eikeland, Tor Einar Fagerland, Kristin Alve Glad, Lars Gule, Gertrud Sofie Hafstad, Annika Melinder and Anne Marita Milde. Norsk sammendrag Forskning på de berørte etter terrorangrepene 22. juli 2011 innebar særlige utfordringer. I antologien De berørte etter 22. juli presenteres erfaringer og problemstillinger relatert til studier som har blitt utført i årene etter terrorangrepene. Formålet med boken er å løfte frem sentrale forskningsetiske spørsmål og prinsipper som respekt, gode konsekvenser og rettferdighet. Boken viser relevansen av forskningen for traumebehandlingen og for forståelsen av terrorhandlingene, men belyser samtidig at både deltagelse i studier og det å bli eksponert for forskningsfunn kan være belastende for de berørte. Hvordan kan respekten for den enkelte best ivaretas før, underveis og etter forskningsdeltakelsen? Hvordan kan man sikre fritt og informert samtykke fra de berørte? På hvilken måte er slik forskning nyttig, og hvilken risiko er akseptabel? Boken diskuterer også utfordringer relatert til deling av sensitive data og formidling av forskningsresultater. Spørsmålene som reises i boken tar utgangspunkt i forskning på de berørte etter terrorangrepene 22. juli, men er imidlertid også relevante for annen forskning. Antologien er redigert av Vidar Enebakk, Helene Ingierd og Nils Olav Refsdal. Øvrige bidragsytere er Grete Dyb, Kari Dyregrov, Ragnar Eikeland, Tor Einar Fagerland, Kristin Alve Glad, Lars Gule, Gertrud Sofie Hafstad, Annika Melinder og Anne Marita Milde." @default.
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• W2770434960 date "2016-09-12" @default.
• W2770434960 modified "2023-09-24" @default.
• W2770434960 title "De berørte etter 22. juli" @default.
• W2770434960 doi "https://doi.org/10.17585/noasp.6.12" @default.
• W2770434960 hasPublicationYear "2016" @default.
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