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- W2785468737 abstract "Purpose A study undertaken by the Queensland Children’s Cancer Centre (QCCC) Brisbane in 1999, identified the availability of expert management for paediatric palliative care afterhours as a priority. In 2000 an afterhours phone service was established to support these families and the health professionals caring for them. This service is operated by oncology nurse consultants experienced in paediatric palliative care. Method Data from 8 years (2002–2010), a total of 1954 calls, regarding 106 patients, were entered into a data base for analysis. Variables analysed included time, reason for call, diagnosis, location from hospital and resulting management. Results The majority of calls were between parents and nurse consultants (51%). Update of patient’s condition (18%) was the primary reason for calls with support and reassurance (16%) and symptom management for pain (10%) being other frequent reasons. The majority of calls occurred over weekends, mid morning or in the early evening, with only 11% (n = 209) of calls occurring between 10 pm and 7 am. Patients with solid or brain tumours called more frequently than patients with haematological malignancies (X2 = 89, df = 42, p-value = < 0.001). Patients with neuroblastoma had the highest call frequency for pain, while Patients with haematological malignancies called regarding a wider range of symptoms such as nausea, constipation and sleep issues. Of all calls made, 43% (n = 814) were single calls, either to or from parents and managed by the nurse consultant without requiring further intervention. Calls were received from throughout Queensland, but in higher proportions from inner regional areas compared to metropolitan areas, indicating the value of the service in supporting communities throughout Queensland. Conclusion The afterhours phone service has proven to be a simple, cost effective service to implement and maintain, which meets the needs afterhours of families caring for a child with an oncological life threatening conditions regardless of distance from the hospital." @default.
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- W2785468737 date "2011-01-01" @default.
- W2785468737 modified "2023-09-26" @default.
- W2785468737 title "Palliative care afterhours phone support, who calls and why: A retrospective review of an afterhours phone service (Conference Abstract)" @default.
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