Matches in SemOpenAlex for { <https://semopenalex.org/work/W2801146784> ?p ?o ?g. }
- W2801146784 endingPage "255" @default.
- W2801146784 startingPage "251" @default.
- W2801146784 abstract "Congenital muscular dystrophies (CMD) cause progressive muscle weakness resulting in severe motor disabilities. Previous studies focused on the effects of motor disability. Here, we explore other factors affecting health related quality-of-life (HRQOL) in CMD. Qualitative interviews were conducted with participant-parent dyads to identify symptoms having the greatest impact on HRQOL. Symptoms were classified into themes and domains representing physical, mental, social health, and disease specific issues. Social role limitations and specific activity impairment were frequently mentioned. A greater understanding of symptoms impacting HRQOL will provide a framework for improved clinical care and patient centered outcomes as new therapies are developed." @default.
- W2801146784 created "2018-05-17" @default.
- W2801146784 creator A5013098751 @default.
- W2801146784 creator A5030731730 @default.
- W2801146784 creator A5049265381 @default.
- W2801146784 creator A5063362332 @default.
- W2801146784 creator A5087400111 @default.
- W2801146784 date "2018-05-29" @default.
- W2801146784 modified "2023-10-17" @default.
- W2801146784 title "A Qualitative Approach to Health Related Quality-of-Life in Congenital Muscular Dystrophy" @default.
- W2801146784 cites W1976770755 @default.
- W2801146784 cites W2001282055 @default.
- W2801146784 cites W2004828581 @default.
- W2801146784 cites W2005490653 @default.
- W2801146784 cites W2023791290 @default.
- W2801146784 cites W2027745468 @default.
- W2801146784 cites W2039862515 @default.
- W2801146784 cites W2040206552 @default.
- W2801146784 cites W2051136095 @default.
- W2801146784 cites W2071527611 @default.
- W2801146784 cites W2097078698 @default.
- W2801146784 cites W2100459100 @default.
- W2801146784 cites W2102986002 @default.
- W2801146784 cites W2109507582 @default.
- W2801146784 cites W2137429240 @default.
- W2801146784 cites W2159620649 @default.
- W2801146784 cites W2237199369 @default.
- W2801146784 cites W2916588112 @default.
- W2801146784 cites W4248854933 @default.
- W2801146784 doi "https://doi.org/10.3233/jnd-170252" @default.
- W2801146784 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/7251779" @default.
- W2801146784 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/29689733" @default.
- W2801146784 hasPublicationYear "2018" @default.
- W2801146784 type Work @default.
- W2801146784 sameAs 2801146784 @default.
- W2801146784 citedByCount "1" @default.
- W2801146784 countsByYear W28011467842022 @default.
- W2801146784 crossrefType "journal-article" @default.
- W2801146784 hasAuthorship W2801146784A5013098751 @default.
- W2801146784 hasAuthorship W2801146784A5030731730 @default.
- W2801146784 hasAuthorship W2801146784A5049265381 @default.
- W2801146784 hasAuthorship W2801146784A5063362332 @default.
- W2801146784 hasAuthorship W2801146784A5087400111 @default.
- W2801146784 hasBestOaLocation W28011467842 @default.
- W2801146784 hasConcept C105702510 @default.
- W2801146784 hasConcept C126322002 @default.
- W2801146784 hasConcept C142724271 @default.
- W2801146784 hasConcept C144024400 @default.
- W2801146784 hasConcept C159110408 @default.
- W2801146784 hasConcept C1862650 @default.
- W2801146784 hasConcept C187212893 @default.
- W2801146784 hasConcept C190248442 @default.
- W2801146784 hasConcept C2776418732 @default.
- W2801146784 hasConcept C2779030066 @default.
- W2801146784 hasConcept C2779134260 @default.
- W2801146784 hasConcept C2779951463 @default.
- W2801146784 hasConcept C2780247198 @default.
- W2801146784 hasConcept C3019006561 @default.
- W2801146784 hasConcept C36289849 @default.
- W2801146784 hasConcept C71924100 @default.
- W2801146784 hasConcept C74909509 @default.
- W2801146784 hasConcept C99508421 @default.
- W2801146784 hasConceptScore W2801146784C105702510 @default.
- W2801146784 hasConceptScore W2801146784C126322002 @default.
- W2801146784 hasConceptScore W2801146784C142724271 @default.
- W2801146784 hasConceptScore W2801146784C144024400 @default.
- W2801146784 hasConceptScore W2801146784C159110408 @default.
- W2801146784 hasConceptScore W2801146784C1862650 @default.
- W2801146784 hasConceptScore W2801146784C187212893 @default.
- W2801146784 hasConceptScore W2801146784C190248442 @default.
- W2801146784 hasConceptScore W2801146784C2776418732 @default.
- W2801146784 hasConceptScore W2801146784C2779030066 @default.
- W2801146784 hasConceptScore W2801146784C2779134260 @default.
- W2801146784 hasConceptScore W2801146784C2779951463 @default.
- W2801146784 hasConceptScore W2801146784C2780247198 @default.
- W2801146784 hasConceptScore W2801146784C3019006561 @default.
- W2801146784 hasConceptScore W2801146784C36289849 @default.
- W2801146784 hasConceptScore W2801146784C71924100 @default.
- W2801146784 hasConceptScore W2801146784C74909509 @default.
- W2801146784 hasConceptScore W2801146784C99508421 @default.
- W2801146784 hasIssue "2" @default.
- W2801146784 hasLocation W28011467841 @default.
- W2801146784 hasLocation W28011467842 @default.
- W2801146784 hasLocation W28011467843 @default.
- W2801146784 hasLocation W28011467844 @default.
- W2801146784 hasOpenAccess W2801146784 @default.
- W2801146784 hasPrimaryLocation W28011467841 @default.
- W2801146784 hasRelatedWork W1970046031 @default.
- W2801146784 hasRelatedWork W2027019453 @default.
- W2801146784 hasRelatedWork W2156472821 @default.
- W2801146784 hasRelatedWork W2169908680 @default.
- W2801146784 hasRelatedWork W2204860814 @default.
- W2801146784 hasRelatedWork W2793450127 @default.
- W2801146784 hasRelatedWork W2801146784 @default.
- W2801146784 hasRelatedWork W2958731307 @default.
- W2801146784 hasRelatedWork W4309774521 @default.
- W2801146784 hasRelatedWork W3148900591 @default.
- W2801146784 hasVolume "5" @default.