Matches in SemOpenAlex for { <https://semopenalex.org/work/W2851543973> ?p ?o ?g. }
- W2851543973 endingPage "841" @default.
- W2851543973 startingPage "829" @default.
- W2851543973 abstract "Introduction: The chronic care model (CCM) provides a holistic approach for managing chronic illnesses. Patients with rare liver diseases (RLD) have complex needs, impaired quality of life and often life-threatening complications. Most RLD meet the criteria for a long-term chronic condition and should be viewed through the prism of CCM. We aimed to ascertain whether the CCM has been considered for the frequently-encountered RLD.Methods: MEDLINE®/PubMed®/Cochrane/EMBASE were searched to identify publications relating to the use of the CCM for the management of six RLD. We identified 33 articles eligible for inclusion.Results: Six, eleven, one, thirteen, two and zero studies, discussed individual components of the CCM for autoimmune hepatitis (AIH), primary biliary cholangitis (PBC), primary sclerosing cirrhosis (PSC), Wilsons disease (WD), alpha-1 antitrypsin deficiency (A1AD) and lysosomal acid lipase deficiency (LALd) respectively. We have not identified studies using the full CCM for any of the aforementioned RLD.Discussion: Unlike in common chronic conditions e.g. diabetes, there has been limited consideration of the use of CCM (or its components) for the management of RLD. This may reflect a reluctance of the clinical community to view these diseases as chronic or lack of healthcare policy investment in rare diseases in general." @default.
- W2851543973 created "2018-07-19" @default.
- W2851543973 creator A5006687609 @default.
- W2851543973 creator A5035431541 @default.
- W2851543973 creator A5061408013 @default.
- W2851543973 creator A5091366163 @default.
- W2851543973 date "2018-07-13" @default.
- W2851543973 modified "2023-10-17" @default.
- W2851543973 title "The role of the chronic care model in promoting the management of the patient with rare liver disease" @default.
- W2851543973 cites W1071546559 @default.
- W2851543973 cites W134730393 @default.
- W2851543973 cites W1477177634 @default.
- W2851543973 cites W1484346356 @default.
- W2851543973 cites W1492382312 @default.
- W2851543973 cites W1498948971 @default.
- W2851543973 cites W1530484072 @default.
- W2851543973 cites W1558320109 @default.
- W2851543973 cites W1813791819 @default.
- W2851543973 cites W1829659851 @default.
- W2851543973 cites W186900963 @default.
- W2851543973 cites W1901587418 @default.
- W2851543973 cites W1921046038 @default.
- W2851543973 cites W1965222888 @default.
- W2851543973 cites W1974489866 @default.
- W2851543973 cites W1975969455 @default.
- W2851543973 cites W1978620498 @default.
- W2851543973 cites W1979848592 @default.
- W2851543973 cites W1980789745 @default.
- W2851543973 cites W1981538777 @default.
- W2851543973 cites W1984355009 @default.
- W2851543973 cites W1993347912 @default.
- W2851543973 cites W1993773603 @default.
- W2851543973 cites W1995832270 @default.
- W2851543973 cites W2005913737 @default.
- W2851543973 cites W2010072335 @default.
- W2851543973 cites W2010285723 @default.
- W2851543973 cites W2021188290 @default.
- W2851543973 cites W2021604300 @default.
- W2851543973 cites W2022174723 @default.
- W2851543973 cites W2022202791 @default.
- W2851543973 cites W2023782815 @default.
- W2851543973 cites W2032770553 @default.
- W2851543973 cites W2037301845 @default.
- W2851543973 cites W2038882540 @default.
- W2851543973 cites W2048772604 @default.
- W2851543973 cites W2058755244 @default.
- W2851543973 cites W2063441834 @default.
- W2851543973 cites W2065447468 @default.
- W2851543973 cites W2066660611 @default.
- W2851543973 cites W2068765209 @default.
- W2851543973 cites W2070114714 @default.
- W2851543973 cites W2070780576 @default.
- W2851543973 cites W2071394537 @default.
- W2851543973 cites W2079703851 @default.
- W2851543973 cites W2081649479 @default.
- W2851543973 cites W2084851303 @default.
- W2851543973 cites W2088541395 @default.
- W2851543973 cites W2099319148 @default.
- W2851543973 cites W2100091301 @default.
- W2851543973 cites W2101201834 @default.
- W2851543973 cites W2103482818 @default.
- W2851543973 cites W2103640738 @default.
- W2851543973 cites W2108326867 @default.
- W2851543973 cites W2108634930 @default.
- W2851543973 cites W2117718926 @default.
- W2851543973 cites W2118422146 @default.
- W2851543973 cites W2122432826 @default.
- W2851543973 cites W2125159607 @default.
- W2851543973 cites W2125763073 @default.
- W2851543973 cites W2131379299 @default.
- W2851543973 cites W2133184964 @default.
- W2851543973 cites W2133275424 @default.
- W2851543973 cites W2134146458 @default.
- W2851543973 cites W2135166135 @default.
- W2851543973 cites W2135532707 @default.
- W2851543973 cites W2137095430 @default.
- W2851543973 cites W2139826204 @default.
- W2851543973 cites W2141276184 @default.
- W2851543973 cites W2141936101 @default.
- W2851543973 cites W2142468239 @default.
- W2851543973 cites W2143190548 @default.
- W2851543973 cites W2145259564 @default.
- W2851543973 cites W2145611913 @default.
- W2851543973 cites W2151186028 @default.
- W2851543973 cites W2151805825 @default.
- W2851543973 cites W2153130274 @default.
- W2851543973 cites W2160424004 @default.
- W2851543973 cites W2162479533 @default.
- W2851543973 cites W2164127864 @default.
- W2851543973 cites W2166606728 @default.
- W2851543973 cites W2166653283 @default.
- W2851543973 cites W2171946097 @default.
- W2851543973 cites W2177748186 @default.
- W2851543973 cites W2328315454 @default.
- W2851543973 cites W2334912166 @default.
- W2851543973 cites W2411806713 @default.
- W2851543973 cites W2585184410 @default.
- W2851543973 cites W2741355356 @default.