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• W2888181361 abstract "Purpose Studies among young adult cancer patients are necessary to improve their psychosocial care situation. However, achieving high response rates in this group is challenging. This study focused on the psychosocial life and supportive care situation of young adult cancer patients, and reports the recruitment and retention strategies, sample characteristics and preferences. Method Participants (aged 18–39 years at diagnosis) diagnosed within the preceding 4 years were recruited from various clinical settings and surveyed at two time points. Results In total, 514 participants completed both surveys. Most patients were recruited from rehabilitation clinics (39.5%) and tumour registries (30.2%). Internet-based self-registration resulted in the highest yield of participants. Participants in inpatient (rehabilitation) treatment preferred to complete a hard copy of the questionnaire at baseline (59.7%), but a strong preference for using the online form was found at follow-up (74.5%). The distribution of diagnoses in the sample was almost comparable to the national incidence rates in Germany. Males and patients with melanoma were slightly under-represented. Conclusions Recruitment of a large sample of young adult cancer patients is possible but requires intensive recruitment efforts, particularly in Germany. Social media and age-specific approaches were found to be effective for recruiting and retaining participants. Giving patients the option to complete a hard copy or the online version of the questionnaire, especially during inpatient treatment, may optimise participation rates. Psychosocial research and support programmes for young adults should consider that women are probably more likely to participate in psychosocial (research) programmes than men." @default.
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• W2888181361 date "2018-10-01" @default.
• W2888181361 modified "2023-09-25" @default.
• W2888181361 title "Recruiting young adult cancer patients: Experiences and sample characteristics from a 12-month longitudinal study" @default.
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• W2888181361 doi "https://doi.org/10.1016/j.ejon.2018.05.001" @default.
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