Matches in SemOpenAlex for { <https://semopenalex.org/work/W2893074747> ?p ?o ?g. }
Showing items 1 to 93 of
93
with 100 items per page.
- W2893074747 endingPage "215" @default.
- W2893074747 startingPage "211" @default.
- W2893074747 abstract "In 2016, four US cancer patients legally challenged Myriad by claiming full access to all genomic information produced in the course of Myriad’s testing of their risks for a variety of cancers. Asserting that Myriad’s refusal to provide them with this information violated the HIPAA Privacy Rule, the patients sought a determination of a right to access all their genetic information from testing laboratories. Such access would not only serve their own care, but also enable them to share their genetic data with the scientific community which they alleged Myriad failed to do. A similar case may be brought in Europe under the novel EU GDPR. Specifically, it would put the GDPR right of access to personal data against Myriad’s database right under the EU Database Right Directive. The outcome of this case could impact the fate of personalized medicine, which depends on the one hand on patients’ having control over their genetic data, and on the other hand on incentives for genetic testing companies to generate these data. We first address the issue of whether the GDPR applies to medical records. We then analyse how GDPR rights could play out in the context of clinical genetic testing and conclude that the GDPR access right stops short of granting unconditional access to all data generated in the process of testing, to the extent that its exercise would result in the violation of medical-professional norms, expose the testing company to potential liability, or compromise normal exploitation of the database of which the personal data form part." @default.
- W2893074747 created "2018-10-05" @default.
- W2893074747 creator A5041723185 @default.
- W2893074747 creator A5079933299 @default.
- W2893074747 date "2018-09-27" @default.
- W2893074747 modified "2023-10-12" @default.
- W2893074747 title "Patients v. Myriad or the GDPR Access Right v. the EU Database Right" @default.
- W2893074747 cites W1568326804 @default.
- W2893074747 cites W2001570648 @default.
- W2893074747 cites W2612870418 @default.
- W2893074747 cites W2788593170 @default.
- W2893074747 doi "https://doi.org/10.1038/s41431-018-0258-4" @default.
- W2893074747 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/6336766" @default.
- W2893074747 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/30262921" @default.
- W2893074747 hasPublicationYear "2018" @default.
- W2893074747 type Work @default.
- W2893074747 sameAs 2893074747 @default.
- W2893074747 citedByCount "4" @default.
- W2893074747 countsByYear W28930747472019 @default.
- W2893074747 countsByYear W28930747472020 @default.
- W2893074747 countsByYear W28930747472022 @default.
- W2893074747 countsByYear W28930747472023 @default.
- W2893074747 crossrefType "journal-article" @default.
- W2893074747 hasAuthorship W2893074747A5041723185 @default.
- W2893074747 hasAuthorship W2893074747A5079933299 @default.
- W2893074747 hasBestOaLocation W28930747471 @default.
- W2893074747 hasConcept C108827166 @default.
- W2893074747 hasConcept C126322002 @default.
- W2893074747 hasConcept C144133560 @default.
- W2893074747 hasConcept C151730666 @default.
- W2893074747 hasConcept C162324750 @default.
- W2893074747 hasConcept C175444787 @default.
- W2893074747 hasConcept C17744445 @default.
- W2893074747 hasConcept C199360897 @default.
- W2893074747 hasConcept C199539241 @default.
- W2893074747 hasConcept C2777834853 @default.
- W2893074747 hasConcept C2779343474 @default.
- W2893074747 hasConcept C2779547435 @default.
- W2893074747 hasConcept C2780673598 @default.
- W2893074747 hasConcept C29122968 @default.
- W2893074747 hasConcept C3090818 @default.
- W2893074747 hasConcept C41008148 @default.
- W2893074747 hasConcept C46355384 @default.
- W2893074747 hasConcept C61326887 @default.
- W2893074747 hasConcept C69360830 @default.
- W2893074747 hasConcept C71924100 @default.
- W2893074747 hasConcept C86803240 @default.
- W2893074747 hasConceptScore W2893074747C108827166 @default.
- W2893074747 hasConceptScore W2893074747C126322002 @default.
- W2893074747 hasConceptScore W2893074747C144133560 @default.
- W2893074747 hasConceptScore W2893074747C151730666 @default.
- W2893074747 hasConceptScore W2893074747C162324750 @default.
- W2893074747 hasConceptScore W2893074747C175444787 @default.
- W2893074747 hasConceptScore W2893074747C17744445 @default.
- W2893074747 hasConceptScore W2893074747C199360897 @default.
- W2893074747 hasConceptScore W2893074747C199539241 @default.
- W2893074747 hasConceptScore W2893074747C2777834853 @default.
- W2893074747 hasConceptScore W2893074747C2779343474 @default.
- W2893074747 hasConceptScore W2893074747C2779547435 @default.
- W2893074747 hasConceptScore W2893074747C2780673598 @default.
- W2893074747 hasConceptScore W2893074747C29122968 @default.
- W2893074747 hasConceptScore W2893074747C3090818 @default.
- W2893074747 hasConceptScore W2893074747C41008148 @default.
- W2893074747 hasConceptScore W2893074747C46355384 @default.
- W2893074747 hasConceptScore W2893074747C61326887 @default.
- W2893074747 hasConceptScore W2893074747C69360830 @default.
- W2893074747 hasConceptScore W2893074747C71924100 @default.
- W2893074747 hasConceptScore W2893074747C86803240 @default.
- W2893074747 hasFunder F4320335254 @default.
- W2893074747 hasIssue "2" @default.
- W2893074747 hasLocation W28930747471 @default.
- W2893074747 hasLocation W28930747472 @default.
- W2893074747 hasLocation W28930747473 @default.
- W2893074747 hasLocation W28930747474 @default.
- W2893074747 hasOpenAccess W2893074747 @default.
- W2893074747 hasPrimaryLocation W28930747471 @default.
- W2893074747 hasRelatedWork W2020668794 @default.
- W2893074747 hasRelatedWork W2272975775 @default.
- W2893074747 hasRelatedWork W2498645877 @default.
- W2893074747 hasRelatedWork W2533832859 @default.
- W2893074747 hasRelatedWork W2789019860 @default.
- W2893074747 hasRelatedWork W2792119889 @default.
- W2893074747 hasRelatedWork W2901967497 @default.
- W2893074747 hasRelatedWork W3183133287 @default.
- W2893074747 hasRelatedWork W4220680677 @default.
- W2893074747 hasRelatedWork W3125244509 @default.
- W2893074747 hasVolume "27" @default.
- W2893074747 isParatext "false" @default.
- W2893074747 isRetracted "false" @default.
- W2893074747 magId "2893074747" @default.
- W2893074747 workType "article" @default.