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- W2897748214 abstract "Systemic sclerosis (SSc) is an orphan disease characterised by autoimmunity, fibrosis of the skin and internal organs, and vasculopathy. SSc may be associated with high morbidity and mortality. In this narrative review we summarise the results of a systematic literature research, which was performed as part of the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases project, aimed at evaluating existing clinical practice guidelines or recommendations. Only in the domains ‘Vascular & Ulcers’ (ie, non-pharmacological approach to digital ulcer), ‘PAH’ (ie, screening and treatment), ‘Treatment’ and ‘Juveniles’ (ie, evaluation of juveniles with Raynaud’s phenomenon) evidence-based and consensus-based guidelines could be included. Hence there is a preponderance of unmet needs in SSc referring to the diagnosis and (non-)pharmacological treatment of several SSc-specific complications. Patients with SSc experience significant uncertainty concerning SSc-related taxonomy, management (both pharmacological and non-pharmacological) and education. Day-to-day impact of the disease (loss of self-esteem, fatigue, sexual dysfunction, and occupational, nutritional and relational problems) is underestimated and needs evaluation." @default.
- W2897748214 created "2018-10-26" @default.
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- W2897748214 date "2018-10-18" @default.
- W2897748214 modified "2023-10-18" @default.
- W2897748214 title "Systemic sclerosis: state of the art on clinical practice guidelines" @default.
- W2897748214 cites W1481282728 @default.
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- W2897748214 cites W2011072396 @default.
- W2897748214 cites W2028921539 @default.
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- W2897748214 cites W2151470207 @default.
- W2897748214 cites W2161370807 @default.
- W2897748214 cites W2162842124 @default.
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- W2897748214 cites W2326235424 @default.
- W2897748214 cites W2338784321 @default.
- W2897748214 cites W2342578606 @default.
- W2897748214 cites W2345043566 @default.
- W2897748214 cites W2394768513 @default.
- W2897748214 cites W2410745900 @default.
- W2897748214 cites W2443555896 @default.
- W2897748214 cites W2533485857 @default.
- W2897748214 cites W2539613767 @default.
- W2897748214 cites W2549071917 @default.
- W2897748214 cites W2560013862 @default.
- W2897748214 cites W2576959201 @default.
- W2897748214 cites W2587953334 @default.
- W2897748214 cites W2605397480 @default.
- W2897748214 cites W2613737879 @default.
- W2897748214 cites W2614068912 @default.
- W2897748214 cites W2614151594 @default.
- W2897748214 cites W2614361030 @default.
- W2897748214 cites W2614809973 @default.
- W2897748214 cites W2618103221 @default.
- W2897748214 cites W2742848686 @default.
- W2897748214 cites W2750520295 @default.
- W2897748214 cites W2761311058 @default.
- W2897748214 cites W2762093674 @default.
- W2897748214 cites W2762508625 @default.
- W2897748214 cites W2762628731 @default.