Matches in SemOpenAlex for { <https://semopenalex.org/work/W2899016831> ?p ?o ?g. }
- W2899016831 endingPage "1380" @default.
- W2899016831 startingPage "1371" @default.
- W2899016831 abstract "Robust evidence about the value of clinical genomic interventions (CGIs), such as genetic/genomic testing or clinical genetic evaluation, is limited. We obtained stakeholders' perspectives on outcomes from CGIs to help inform their value.We used an adapted Delphi expert panel process. Two anonymous survey rounds assessed the value of 44 CGI outcomes and whether a third party should pay for them, with discussion in between rounds.Sixty-six panelists responded to the first-round survey and 60 to the second. Policy-makers/payers gave the lowest ratings for value and researchers gave the highest. Patients/consumers had the most uncertainty about value and payment by a third party. Uncertainty about value was observed when evidence of proven health benefit was lacking, potential harms outweighed benefits for reproductive outcomes, and outcomes had only personal utility for individuals or family members. Agreement about outcomes for which a third party should not pay included prevention through surgery with unproven health benefits, establishing ancestry, parental consanguinity, and paternity.Research is needed to understand factors contributing to uncertainty and stakeholder differences about the value of CGI outcomes. Reaching consensus will accelerate the creation of metrics to generate the evidence needed to inform value and guide policies that promote availability, uptake, and coverage of CGIs." @default.
- W2899016831 created "2018-11-09" @default.
- W2899016831 creator A5005968296 @default.
- W2899016831 creator A5021181338 @default.
- W2899016831 creator A5025418027 @default.
- W2899016831 creator A5035872952 @default.
- W2899016831 creator A5040608085 @default.
- W2899016831 creator A5049223220 @default.
- W2899016831 creator A5054494932 @default.
- W2899016831 creator A5063360212 @default.
- W2899016831 creator A5080024397 @default.
- W2899016831 creator A5081366372 @default.
- W2899016831 date "2019-06-01" @default.
- W2899016831 modified "2023-09-26" @default.
- W2899016831 title "Stakeholders’ views on the value of outcomes from clinical genetic and genomic interventions" @default.
- W2899016831 cites W1545047539 @default.
- W2899016831 cites W1792411535 @default.
- W2899016831 cites W1966307981 @default.
- W2899016831 cites W1967828507 @default.
- W2899016831 cites W1971560948 @default.
- W2899016831 cites W1976487539 @default.
- W2899016831 cites W1982949728 @default.
- W2899016831 cites W1983651981 @default.
- W2899016831 cites W1999808841 @default.
- W2899016831 cites W2013261802 @default.
- W2899016831 cites W2021842838 @default.
- W2899016831 cites W2046031882 @default.
- W2899016831 cites W2046182211 @default.
- W2899016831 cites W2049278559 @default.
- W2899016831 cites W2086586752 @default.
- W2899016831 cites W2088018443 @default.
- W2899016831 cites W2098439558 @default.
- W2899016831 cites W2123900946 @default.
- W2899016831 cites W2125562515 @default.
- W2899016831 cites W2139926668 @default.
- W2899016831 cites W2147899699 @default.
- W2899016831 cites W2165227514 @default.
- W2899016831 cites W2167564136 @default.
- W2899016831 cites W2267870766 @default.
- W2899016831 cites W2416285961 @default.
- W2899016831 cites W2517276995 @default.
- W2899016831 cites W2567120792 @default.
- W2899016831 cites W2612011127 @default.
- W2899016831 cites W2790525743 @default.
- W2899016831 cites W3126041322 @default.
- W2899016831 cites W4205749678 @default.
- W2899016831 cites W4211050597 @default.
- W2899016831 cites W2119766738 @default.
- W2899016831 doi "https://doi.org/10.1038/s41436-018-0344-6" @default.
- W2899016831 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/30377384" @default.
- W2899016831 hasPublicationYear "2019" @default.
- W2899016831 type Work @default.
- W2899016831 sameAs 2899016831 @default.
- W2899016831 citedByCount "8" @default.
- W2899016831 countsByYear W28990168312020 @default.
- W2899016831 countsByYear W28990168312021 @default.
- W2899016831 countsByYear W28990168312022 @default.
- W2899016831 countsByYear W28990168312023 @default.
- W2899016831 crossrefType "journal-article" @default.
- W2899016831 hasAuthorship W2899016831A5005968296 @default.
- W2899016831 hasAuthorship W2899016831A5021181338 @default.
- W2899016831 hasAuthorship W2899016831A5025418027 @default.
- W2899016831 hasAuthorship W2899016831A5035872952 @default.
- W2899016831 hasAuthorship W2899016831A5040608085 @default.
- W2899016831 hasAuthorship W2899016831A5049223220 @default.
- W2899016831 hasAuthorship W2899016831A5054494932 @default.
- W2899016831 hasAuthorship W2899016831A5063360212 @default.
- W2899016831 hasAuthorship W2899016831A5080024397 @default.
- W2899016831 hasAuthorship W2899016831A5081366372 @default.
- W2899016831 hasBestOaLocation W28990168311 @default.
- W2899016831 hasConcept C10138342 @default.
- W2899016831 hasConcept C119857082 @default.
- W2899016831 hasConcept C126322002 @default.
- W2899016831 hasConcept C144133560 @default.
- W2899016831 hasConcept C145097563 @default.
- W2899016831 hasConcept C154945302 @default.
- W2899016831 hasConcept C15744967 @default.
- W2899016831 hasConcept C159110408 @default.
- W2899016831 hasConcept C162118730 @default.
- W2899016831 hasConcept C17744445 @default.
- W2899016831 hasConcept C201305675 @default.
- W2899016831 hasConcept C27415008 @default.
- W2899016831 hasConcept C2776291640 @default.
- W2899016831 hasConcept C2780673598 @default.
- W2899016831 hasConcept C39549134 @default.
- W2899016831 hasConcept C41008148 @default.
- W2899016831 hasConcept C512399662 @default.
- W2899016831 hasConcept C60641444 @default.
- W2899016831 hasConcept C71924100 @default.
- W2899016831 hasConceptScore W2899016831C10138342 @default.
- W2899016831 hasConceptScore W2899016831C119857082 @default.
- W2899016831 hasConceptScore W2899016831C126322002 @default.
- W2899016831 hasConceptScore W2899016831C144133560 @default.
- W2899016831 hasConceptScore W2899016831C145097563 @default.
- W2899016831 hasConceptScore W2899016831C154945302 @default.
- W2899016831 hasConceptScore W2899016831C15744967 @default.
- W2899016831 hasConceptScore W2899016831C159110408 @default.
- W2899016831 hasConceptScore W2899016831C162118730 @default.