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- W2900510535 abstract "This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domains - interaction, emotional well-being and support for the hearing-impaired child and the overall QoL -- and two open-ended questions for participants to provide comments and suggestions to enhance their family's QoL. A total of 63 questionnaires were e-mailed or mailed to families who met the inclusion criteria. The study was conducted under the Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur. A total of 79 parents and 23 siblings from 44 families of children with CI participated in this study. The mean score for each of the sub-domain and the overall QoL for both subject groups were computed. The answers for the open-ended questions were listed and organized into themes. There were significant correlations between the overall QoL score and each of the test domains for the parents' group (p < 0.01). For the siblings' group, only the interaction and support domains were significant. Interaction was the main sub-domain affecting the parents' QoL but for siblings, this could not be determined. A total of 60% of the pooled comments were classified as ‘concerns’. As for the suggestions, 38.7% requested some form of support, mainly financial (41.7%). Families with hearing impaired children with CI have numerous concerns that need to be addressed, even though, on average, they were satisfied with their overall QoL." @default.
- W2900510535 created "2018-11-29" @default.
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- W2900510535 date "2019-03-01" @default.
- W2900510535 modified "2023-10-11" @default.
- W2900510535 title "Quality of life of parents and siblings of children with cochlear implants" @default.
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- W2900510535 doi "https://doi.org/10.1016/j.joto.2018.11.004" @default.
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