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• W2900890147 abstract "Purpose: The purpose of this study was to longitudinally explore the experiences of young adult, adult, and older adult intergenerational caregivers caring for a parent with end-stage heart failure (HF). Design: This study was a secondary analysis of qualitative data collected during a longitudinal study that sought to determine the palliative care needs of individuals with end-stage HF and their family caregivers. Methods: Longitudinal interviews from 23 young adult, adult, and older adult children who were caring for a parent with end-stage HF were selected for thematic analysis. Researchers individually analyzed the interviews and then, as a group, came to a consensus about themes. Findings: Five major themes were identified: c aregiver resources, role management, caregiver–parent relationships, filial responsibility , and personal benefits and challenges . Conclusions: These intergenerational caregivers struggled to balance their busy lives and caregiving roles. However, most felt supported by other family members or external resources. Longitudinal findings support a need for improved employer-based support for intergenerational caregivers and special attention to young carers in research and practice. Recognition of and advocacy for intergenerational caregivers providing care for a chronically ill parent is needed." @default.
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• W2900890147 date "2018-11-01" @default.
• W2900890147 modified "2023-09-29" @default.
• W2900890147 title "Intergenerational Caregivers of Parents With End-Stage Heart Failure" @default.
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• W2900890147 doi "https://doi.org/10.1891/1541-6577.32.4.413" @default.
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