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- W2912421110 abstract "Managing the transition from childhood to adulthood in people with chronic disease. In young people with chronic condition, the transition from childhood to adulthood is a double challenge: challenge of adolescent development, impaired by disease or disability, and challenge of transition from pediatric to adult healthcare. To avoid discontinuity of care, transition must begin early (12-13 years) around personalized objectives, and be supported until transfer in adult care, planed when the adolescent is ready and clinically stable. In a perspective of empowerment, education of the young patient includes the self-management of the disease but also of its impact on life in young adults (affective aspects, professional life, hobbies, general health…). Attention should be paid on coordination between pediatric and adult care.Gestion de la transition enfance-âge adulte dans les maladies chroniques. Pour les jeunes atteints de maladie chronique, le passage de l’enfance à l’âge adulte représente un double défi : défi du développement adolescent, impacté par la maladie ou le handicap, et défi du passage des services de pédiatrie aux services d’adultes. Pour limiter les ruptures de suivi, la transition se prépare précocement (12-13 ans) autour d’objectifs personnalisés, et s’accompagne jusqu’au transfert en soins d’adultes, programmé quand le jeune est apte et cliniquement stable. Dans une démarche d’autonomisation, éduquer le jeune patient implique d’aborder avec lui l’autogestion de sa maladie mais aussi son impact sur sa vie de jeune adulte (vie affective et professionnelle, loisirs, santé générale…). Coordonner les soins avec l’équipe d’adultes est aussi un point-clé." @default.
- W2912421110 created "2019-02-21" @default.
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- W2912421110 date "2017-04-01" @default.
- W2912421110 modified "2023-09-30" @default.
- W2912421110 title "[Managing the transition from childhood to adulthood in people with chronic disease]." @default.
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