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• W2912484633 abstract "Background: A quality of life approach to managing communication and neurodegenerative conditions is increasingly encouraged by professional bodies and healthcare models. Clinical services for primary progressive aphasia (PPA) continue to expand and the research base continues to grow; however, there is little research specifically investigating quality of life in PPA.Aims: This critical review aimed to determine the available knowledge about quality of life in PPA and gaps in that knowledge, and to consider how PPA researchers might best address those gaps.Main contribution: Two unpublished single case series studies and one published case study were identified that directly investigated aspects of quality of life in PPA. These suggested that quality of life is heterogenous and determined by a range of factors, supporting a person-centred approach to care. The current literature also includes five accounts of living with PPA authored by individuals with PPA or their carers, discussing factors that influenced these individuals’ quality of life. Seventeen empirical investigations of mood were identified, suggesting that approximately 40% of individuals with PPA develop depression at some point. Finally, several recent studies have noted the importance of promoting quality of life in PPA and/or have utilised quality of life outcome measures; however, most lack a clear conceptualisation of the construct of quality of life, and how this construct is related to the instruments and methods chosen to measure it.Conclusions: Literature on quality of life in PPA is beginning to emerge, although little is available in indexed databases. More research is needed that better conceptualises the construct of quality of life, critically appraises the way quality of life is assessed in PPA, builds on findings from the current small samples, and involves individuals with PPA in formulating research directions and research tools that will enable discussion about their quality of life." @default.
• W2912484633 created "2019-02-21" @default.
• W2912484633 creator A5002792000 @default.
• W2912484633 creator A5032979408 @default.
• W2912484633 creator A5051574002 @default.
• W2912484633 date "2019-01-28" @default.
• W2912484633 modified "2023-10-13" @default.
• W2912484633 title "Quality of life in primary progressive aphasia: What do we know and what can we do next?" @default.
• W2912484633 cites W1531903698 @default.
• W2912484633 cites W1544359545 @default.
• W2912484633 cites W1598502789 @default.
• W2912484633 cites W1781941382 @default.
• W2912484633 cites W1873057782 @default.
• W2912484633 cites W1919278891 @default.
• W2912484633 cites W1964195187 @default.
• W2912484633 cites W1975140689 @default.
• W2912484633 cites W1977042877 @default.
• W2912484633 cites W1978093816 @default.
• W2912484633 cites W1979830932 @default.
• W2912484633 cites W1989179297 @default.
• W2912484633 cites W1990467359 @default.
• W2912484633 cites W1991879108 @default.
• W2912484633 cites W1996489679 @default.
• W2912484633 cites W1997121542 @default.
• W2912484633 cites W1999887188 @default.
• W2912484633 cites W2002519946 @default.
• W2912484633 cites W2005615266 @default.
• W2912484633 cites W2008178494 @default.
• W2912484633 cites W2013855043 @default.
• W2912484633 cites W2018996065 @default.
• W2912484633 cites W2021929666 @default.
• W2912484633 cites W2022641202 @default.
• W2912484633 cites W2029918935 @default.
• W2912484633 cites W2031065729 @default.
• W2912484633 cites W2038484894 @default.
• W2912484633 cites W2039585895 @default.
• W2912484633 cites W2040455871 @default.
• W2912484633 cites W2040612189 @default.
• W2912484633 cites W2044172210 @default.
• W2912484633 cites W2044493425 @default.
• W2912484633 cites W2052168556 @default.
• W2912484633 cites W2052645062 @default.
• W2912484633 cites W2056913322 @default.
• W2912484633 cites W2062496632 @default.
• W2912484633 cites W2062904641 @default.
• W2912484633 cites W2063652271 @default.
• W2912484633 cites W2080514054 @default.
• W2912484633 cites W2081838509 @default.
• W2912484633 cites W2086687292 @default.
• W2912484633 cites W2099740494 @default.
• W2912484633 cites W2111963393 @default.
• W2912484633 cites W2112275614 @default.
• W2912484633 cites W2112519660 @default.
• W2912484633 cites W2114005972 @default.
• W2912484633 cites W2117095913 @default.
• W2912484633 cites W2118763705 @default.
• W2912484633 cites W2125841668 @default.
• W2912484633 cites W2127552336 @default.
• W2912484633 cites W2130490626 @default.
• W2912484633 cites W2138190873 @default.
• W2912484633 cites W2140547370 @default.
• W2912484633 cites W2148782745 @default.
• W2912484633 cites W2155906235 @default.
• W2912484633 cites W2156803659 @default.
• W2912484633 cites W2159716692 @default.
• W2912484633 cites W2166052202 @default.
• W2912484633 cites W2168423230 @default.
• W2912484633 cites W2218273431 @default.
• W2912484633 cites W2220007420 @default.
• W2912484633 cites W2293286049 @default.
• W2912484633 cites W2295990281 @default.
• W2912484633 cites W2306037976 @default.
• W2912484633 cites W2333986897 @default.
• W2912484633 cites W2345830887 @default.
• W2912484633 cites W2402578860 @default.
• W2912484633 cites W2500848080 @default.
• W2912484633 cites W2509504813 @default.
• W2912484633 cites W2518878435 @default.
• W2912484633 cites W2526339136 @default.
• W2912484633 cites W2529132213 @default.
• W2912484633 cites W2575356631 @default.
• W2912484633 cites W2600385803 @default.
• W2912484633 cites W2605306502 @default.
• W2912484633 cites W2619097621 @default.
• W2912484633 cites W2734276006 @default.
• W2912484633 cites W2765340311 @default.
• W2912484633 cites W2789245254 @default.
• W2912484633 cites W2809408284 @default.
• W2912484633 cites W2891886541 @default.
• W2912484633 cites W2970972681 @default.
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• W2912484633 doi "https://doi.org/10.1080/02687038.2019.1568135" @default.
• W2912484633 hasPublicationYear "2019" @default.
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