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- W2913130548 abstract "Topic Significance & Study Purpose/Background/Rationale Online search engines, forums and social networks can offer an important space to ask questions and share experiences. Symptoms from Graft versus Host Disease (GVHD) can seriously impact the quality of life in patients and the family and/or friends who take care of them. While online searches, forums and social networks has become one of the most popular ways that people learn about diseases, not much is known about which online sources receive the most engagements as measured my sharing on social networks (Facebook, Twitter, Pintrest, Reddit). Methods, Intervention, & Analysis Our objective was to analyze the sites with the most engagement online on the topic of graft versus host disease. We used an online analytical research program (BuzzSumo), which can assess specific content and identify sites that generate the greatest frequency of engagement across social platforms. Our analysis covered activity from 10/2016 to 10/2018. Findings & Interpretation From the analysis of 1852 online articles on GVHD and 32,299 engagements, we found that the social network that was used the most was Facebook and to a much lesser extent Twitter. The Pinterest and Reddit platforms were not engaged on this topic. Most engagement was due to online articles on GVHD for both Facebook and Twitter with a significantly lesser amount of engagement for video content. Articles on GVHD ranging from 1000-3000 words created more engagement than articles that were either very brief ( 3000). Sites that generated the most engagement was from established medical journals and medical news sources. An analysis of 771 Facebook posts on GVHD with 163,555 engagements revealed that images and video posts generated the most engagements and that posts that were >300 characters generated more engagement. An analysis of questions asked online mentioning GVHD revealed that the most common topics were that of “experience” and sites of involvement (gut or skin). Discussion & Implications Online articles and social networks have become integrated into our daily lives. It is important that we start to understand how these information sources are being used by patients, caregivers and health care providers. Our analysis of online engagement on the topic of GVHD is an example of how analytical programs can be used to help understand where and how people are engaging to learn and share their experiences with GVHD." @default.
- W2913130548 created "2019-02-21" @default.
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- W2913130548 date "2019-03-01" @default.
- W2913130548 modified "2023-10-14" @default.
- W2913130548 title "Graft Versus Host Disease - an Analysis of Internet and Social Network Activity and Engagement" @default.
- W2913130548 doi "https://doi.org/10.1016/j.bbmt.2018.12.185" @default.
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