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- W2938641151 abstract "The abstract is free to read in the publishers programme Since 2012, through a semi-longitudinal ethnographic case study, we have tracked the ‘lived experience’ of aged care for residents, their families and staff. As well as observations and repeated interviews, residents engaged in photovoice and poetic inquiry. In this presentation, I explore the unexpected ethical challenges and compromises arising from the elongated time frame, the participatory nature of arts-based research, residents’ declining health and vulnerability, and the unique aged care setting that made researcher visits valued and visible. Mindful of our ethical responsibilities and considerations of power, relationships and reciprocity, confidentiality, and authenticity, we followed an ethic of care; engaging in ongoing consent, member-checking and pseudonym self-selection. Yet, our original ethics application did not cover inter-personal jealousy when participants photographs were (or were not) selected by peers for an exhibition; how to respond to family requesting their deceased fathers transcripts or when a 86 year old widow seeks a lift to the hospital as she cannot afford a taxi; challenges in publishing an older woman’s story of ‘coming out’ in aged care about sexual identity and childhood sexual abuse; and how to cope when (despite explicitly consenting) a participant demands her poem is removed in the last days of the exhibition. Forty years younger than most participants, I reflect on boundaries of age, historical socio-cultural change, class, gender, sexuality, opportunity and education. I highlight the hidden tensions and impacts of ‘ethnographic intimacy’, endeavouring to unpack the “fuzzy boundaries” that challenge us ethically, personally and professionally in ethnographic research fieldwork." @default.
- W2938641151 created "2019-04-25" @default.
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- W2938641151 date "2017-01-01" @default.
- W2938641151 modified "2023-09-26" @default.
- W2938641151 title "Yes, No, Maybe...: How visual methods challenge participant-researcher ethical boundaries – insight from qualitative longitudinal research in aged care" @default.
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