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- W2947084286 abstract "e18102 Background: Online search engines, forums and social networks can offer an important space to ask questions and share experiences. Online searches, forums and social networks have become one of the most common ways patients learn about their lymphoma. However, not much is known about which sites and online sources engage people on the topic of lymphoma and which social networks are used to learn and/or share experiences. Methods: Our objective was to analyze the sites with the most engagement online on the topic of lymphoma. We used an online analytical research program (BuzzSumo), which can assess specific content and identify sites that generate the greatest frequency of engagement across social platforms. Our analysis covered activity from 2/2014-2/2019. Results: From the analysis of 9,141 online articles on the topic of lymphoma and 662,690 engagements, we found that the social network that was used the most was Facebook and to a much lesser extent Twitter. The Pinterest and Reddit platforms were not engaged on this topic. Most engagements were with “List” and “What you should know” articles on lymphoma for both Facebook and Twitter with a significantly lesser amount of engagement for video content. Articles on lymphoma less than 2000 words had the most engagement. A number of different types of sites generated the most engagements -- ranging from media outlets, lymphoma foundations and large medical centers. An analysis of 28,863 Facebook posts on lymphoma with 4,765,956 total engagements revealed that video posts generated the most engagements and that posts that were > 300 characters generated more engagement. An analysis of questions asked online mentioning lymphoma revealed that the most common topics were that of “diagnosis” and associated emotions – “worried” or “scared.” Conclusions: Online articles and social networks have become integrated into our daily lives. It is important that we start to understand how these information sources are being used by patients, caregivers and health care providers. Our analysis of online engagement on the topic of lymphoma is an example of how analytical programs can be used to help understand where and how people are engaging to learn and share their experiences with lymphoma." @default.
- W2947084286 created "2019-06-07" @default.
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- W2947084286 date "2019-05-20" @default.
- W2947084286 modified "2023-09-27" @default.
- W2947084286 title "Searching for lymphoma: An analysis of internet and social network activity and engagement." @default.
- W2947084286 doi "https://doi.org/10.1200/jco.2019.37.15_suppl.e18102" @default.
- W2947084286 hasPublicationYear "2019" @default.
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