Matches in SemOpenAlex for { <https://semopenalex.org/work/W2963287788> ?p ?o ?g. }
Showing items 1 to 91 of
91
with 100 items per page.
- W2963287788 endingPage "13" @default.
- W2963287788 startingPage "8" @default.
- W2963287788 abstract "Background Research is needed to improve care and diminish suffering for children with life-limiting illnesses and their parents. However, there are doubts about whether it is possible to conduct paediatric end of life research safely and ethically, as it may unduly burden or inadvertently harm participants.Aim To compare and evaluate responses from participants to the assessments of burdens and benefits that were conducted at two timepoints during a phenomenological study that investigated parents’ experiences of having a child with life-limiting cancer participate in a Phase I clinical trial.Discussion Parents reported that participating in the study was beneficial and resulted in minimal burden or distress. The assessment of benefits and burdens at the first timepoint appeared sufficient to understand participants’ experiences.Conclusion This study adds to the evidence that research may be safely and effectively conducted with parents of children who are deceased or have life-limiting illnesses. Further research is needed to evaluate the most effective timing of assessments of the burdens and benefits of their participation in research.Implications for practice It is important when conducting research with people with life-limiting illnesses or their family members to assess the burdens and benefits of their participation, to understand their experiences and assist in its conduct." @default.
- W2963287788 created "2019-07-30" @default.
- W2963287788 creator A5029850767 @default.
- W2963287788 creator A5087486600 @default.
- W2963287788 date "2019-09-16" @default.
- W2963287788 modified "2023-10-18" @default.
- W2963287788 title "Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses" @default.
- W2963287788 cites W1501915192 @default.
- W2963287788 cites W2002781796 @default.
- W2963287788 cites W2019437175 @default.
- W2963287788 cites W2021770425 @default.
- W2963287788 cites W2032945892 @default.
- W2963287788 cites W2035303272 @default.
- W2963287788 cites W2040438131 @default.
- W2963287788 cites W2067055835 @default.
- W2963287788 cites W2077151575 @default.
- W2963287788 cites W2125671688 @default.
- W2963287788 cites W2127311172 @default.
- W2963287788 cites W2135679140 @default.
- W2963287788 cites W2141045513 @default.
- W2963287788 cites W2154486582 @default.
- W2963287788 cites W2283246295 @default.
- W2963287788 cites W2342195377 @default.
- W2963287788 cites W2487271471 @default.
- W2963287788 cites W2570015771 @default.
- W2963287788 cites W2773512359 @default.
- W2963287788 cites W2773576129 @default.
- W2963287788 cites W2797213366 @default.
- W2963287788 cites W2954390361 @default.
- W2963287788 doi "https://doi.org/10.7748/nr.2019.e1617" @default.
- W2963287788 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/7008129" @default.
- W2963287788 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/31468872" @default.
- W2963287788 hasPublicationYear "2019" @default.
- W2963287788 type Work @default.
- W2963287788 sameAs 2963287788 @default.
- W2963287788 citedByCount "3" @default.
- W2963287788 countsByYear W29632877882020 @default.
- W2963287788 countsByYear W29632877882021 @default.
- W2963287788 crossrefType "journal-article" @default.
- W2963287788 hasAuthorship W2963287788A5029850767 @default.
- W2963287788 hasAuthorship W2963287788A5087486600 @default.
- W2963287788 hasBestOaLocation W29632877882 @default.
- W2963287788 hasConcept C127413603 @default.
- W2963287788 hasConcept C139265228 @default.
- W2963287788 hasConcept C15744967 @default.
- W2963287788 hasConcept C159110408 @default.
- W2963287788 hasConcept C188198153 @default.
- W2963287788 hasConcept C2777363581 @default.
- W2963287788 hasConcept C2779951463 @default.
- W2963287788 hasConcept C2994186709 @default.
- W2963287788 hasConcept C70410870 @default.
- W2963287788 hasConcept C71924100 @default.
- W2963287788 hasConcept C77805123 @default.
- W2963287788 hasConcept C78519656 @default.
- W2963287788 hasConceptScore W2963287788C127413603 @default.
- W2963287788 hasConceptScore W2963287788C139265228 @default.
- W2963287788 hasConceptScore W2963287788C15744967 @default.
- W2963287788 hasConceptScore W2963287788C159110408 @default.
- W2963287788 hasConceptScore W2963287788C188198153 @default.
- W2963287788 hasConceptScore W2963287788C2777363581 @default.
- W2963287788 hasConceptScore W2963287788C2779951463 @default.
- W2963287788 hasConceptScore W2963287788C2994186709 @default.
- W2963287788 hasConceptScore W2963287788C70410870 @default.
- W2963287788 hasConceptScore W2963287788C71924100 @default.
- W2963287788 hasConceptScore W2963287788C77805123 @default.
- W2963287788 hasConceptScore W2963287788C78519656 @default.
- W2963287788 hasIssue "3" @default.
- W2963287788 hasLocation W29632877881 @default.
- W2963287788 hasLocation W29632877882 @default.
- W2963287788 hasLocation W29632877883 @default.
- W2963287788 hasLocation W29632877884 @default.
- W2963287788 hasLocation W29632877885 @default.
- W2963287788 hasOpenAccess W2963287788 @default.
- W2963287788 hasPrimaryLocation W29632877881 @default.
- W2963287788 hasRelatedWork W1501661849 @default.
- W2963287788 hasRelatedWork W1557541522 @default.
- W2963287788 hasRelatedWork W1973423536 @default.
- W2963287788 hasRelatedWork W2117908720 @default.
- W2963287788 hasRelatedWork W2410107133 @default.
- W2963287788 hasRelatedWork W2748952813 @default.
- W2963287788 hasRelatedWork W2899084033 @default.
- W2963287788 hasRelatedWork W3123020258 @default.
- W2963287788 hasRelatedWork W3201580729 @default.
- W2963287788 hasRelatedWork W4205163684 @default.
- W2963287788 hasVolume "27" @default.
- W2963287788 isParatext "false" @default.
- W2963287788 isRetracted "false" @default.
- W2963287788 magId "2963287788" @default.
- W2963287788 workType "article" @default.